I am sorry you have had such a horrid time! I don't know if you would like more advice or just a supportive shoulder to lean on? It has been long enough since your last surgery that ART can be done on and around the stoma site. I have one very hard section slightly to the left of my incisions scar that can not be massaged due to resulting pain but breaking up the rest of the scar tissue helped me to increase my yoga stretches. This old lady can now do a back bend! Lol! I keep creating new scar tissue so the ART continues to be very helpful.
One change that worked for me to stop pouchitis was eliminating sugars, grains, dairy and soy from my diet. It took a little over 30 days for my chronic pouchitis to completely disappear. I am so relieved to be off of the antibiotics. Flagyl made me very ill. Xifaxin worked well but it is too expensive for me. Before changing my diet I had cuffitis too. I was pretty overwhelmed by it all. The pain, the exhaustion, the despair, and the loss of identity from being chronically ill and in pain was horrible.If I slip from my diet, the pain and infections start all over again.
It is very late here, but I wanted to respond to your post asap. Hang in there!