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Reply to "Alkaline system vs acid stopping pouch infection"

Hey Jan,  

 

Through these years you have been there responding to posts, often mine.  Thank you again for this support.  

 

So you also deal with chronic pouchitis.  I'm so sorry to hear this.  I was not aware you also suffer this way because I know how physically destructive this is.  Of course I will continue to post, but more importantly does this vinegar regimen assist you at all.  I should also tell you that through my pouch years I would crave vinegar and often added it to various food items.  I mentioned it to my gastro and he said it was probably my system wanting salt.  But it was not until I started the lemon juice water and moved to vinegar water (along with significant probiotic use) that I have seen a shift in pouchitis occurance.  

 

My thoughts are with you.

 

I want to note this forum is hugely important for all of us in this situation.  If resolves are found, I have no doubt it will surface here, through us, not necessarily through medical channels.  (I could tell you stories about the blank stares from numerous doctors, I counted ten, during my last hospital stay.  It was puzzling having to tell them how to treat/assist mean .  What an expensive waste that was.)  

 

I wish all of you all my best.

 

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