Hi - I have my pouch since 1998 following 30 years of UC. I have had 3 treatments with Alicaforsen. Twice in a named patient programme and once in a clinical trial at University College Hospital London. The improvement in my overall health and pouch function, especially after the 3rd treatment has been dramatic. Now a year on I think things are beginning to flare up again but a years worth of not constantly being in pain or needing the toilet has been amazing and I have been told that I can have more Alicaforsen if I need it. My general health also improved and I have had fewer colds and no flu!
Although the nightly enemas are disruptive the benefits for me have been totally worth it.