I had my annual pouchoscopy today a year after takedown. As some of you may know I have been struggling with cuffitis and pouchitis in the pouch outlet since takedown. I just recently got off antibiotics about ten days ago after a solid year on them. I took myself off them to see what would happen. I am concerned about my pouch results and was wondering if anyone could offer any advice.
My pouch results showed normal mucousa to mid ileal pouch. I have an 8 Mm ulcer st the anastomoses and moderate friability, erythema, and exsudates in distal pouch with moderate erythema, edema and friability in cuff consistent with cuffitis.
My GI indicated rectal meds but no antibiotics and to see him in a year for surveillance and biopsies. I am asymptomatic regarding the cuffitis (may bleed on occasion) and pretty much with pouchitis too other than the sweats I get on occasion and some abdominal pain. Today my temp was 99 prior to scope and I often run low.
My fear here is that my distal pouch outlet and cuff are in bad shape as the word friable (crumbling) is frightening. I never had issues like this in the 23 years I had UC in my rectum or cuff so I do not understand this. Being only one year since takedown with these results doesn't give me much encouragement regarding maintaining my pouch for the long run.
Anyone had a similar experience and still have their pouch or have any thought on me being able to retain mine?
Original Post