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Reply to "Acute pouchitis turned into Crohns"

Kate, I feel for you. Insurance navigation is the worst! The only thing I can say in their defense is that there are probably loads of people who demand out of network providers because of a false perception of better care, when in reality it is just better marketing. But, in your case it is different because you aren’t getting the same care. I can only hope that once you get your diagnosis and plan, the local guys can follow it!

In regard to the UC vs Crohn’s debate, my understanding is that they still tend to want to categorize IBD into Crohn’s and UC. However, the consensus is that there are numerous subtypes of IBD and it is a spectrum of diseases, many of them overlapping. Once they get the genetics figured out they will be better able to determine which treatment options will be successful for each patient. THAT is what is most important, not what the name of your disease is. The success of biologics in general and their early adoption in the disease course has led to a decline in colectomies for IBD.

Jan

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