@katenet posted:I am just looking at my biopsy report now and it looks like there is inflammation proximal to the pouch. My Diagnosis is also switched to indeterminate colitis
i want to validate the sky is falling Crohns panic for a minute. As a child I was constantly told it was so much better to have UC and at least I didn’t have Crohns. There definitely was a hierarchy and perhaps many can relate to feeling relieved to “only” having UC. I was reassured the disease would be gone and cured as soon as I got the j pouch.
To find out now at age 53 that was maybe a wrong diagnosis is disorienting because of the many years of soothing and reassuring past messages. It takes time to get to acceptance. As much as I want to just focus on treatment and avoid labels I have to be honest that I'm struggling a bit.
Kate
@@Kate I don’t think biopsy results mean anything. Look I’m seeing top doctors & researchers. I also get good treatment bcos I support few research programs for this university/hospital. When I got diagnosed with acute inflammation in pouch, doctors said that I might have developed chronic pouchitus & even Crohns. However, after the biopsy, they said it’s hard to differentiate between the two - pouchitis & Crohns. And it’s really no big deal bcos the treatment can be same for acute pouchitis & Crohns. I say, live your passion, workout, eat healthy, & taper your Cipro slowly over 4-6 months. You will be fine.