I am just looking at my biopsy report now and it looks like there is inflammation proximal to the pouch. My Diagnosis is also switched to indeterminate colitis
i want to validate the sky is falling Crohns panic for a minute. As a child I was constantly told it was so much better to have UC and at least I didn’t have Crohns. There definitely was a hierarchy and perhaps many can relate to feeling relieved to “only” having UC. I was reassured the disease would be gone and cured as soon as I got the j pouch.
To find out now at age 53 that was maybe a wrong diagnosis is disorienting because of the many years of soothing and reassuring past messages. It takes time to get to acceptance. As much as I want to just focus on treatment and avoid labels I have to be honest that I'm struggling a bit.
Kate