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Reply to "Acute pouchitis turned into Crohns"

@CTBarrister posted:

No problem Adam. I have seen too many "I have Crohn's and the sky is falling" posts on this board, that are really stressing out over something which is in essence just a label, and not really focused on more important issues. I would also note that some people say ANY inflammation inside the ileum is Crohn's. By that definition I definitely have Crohn's, but that definition doesn't account for the fact that the J Pouch has no backsplash valve and what causes inflammation above the J Pouch inlet in many cases is the lack of a backsplash valve. This is why the labels simply cannot be plugged in and played with all patients. My GI doctors were all excellent doctors (one of whom was mentored by the famous Bo Shen and in fact discussed my case with Shen), and they all saw me as a difficult diagnosis for the reasons I have mentioned above. However, from what I have read on this board, there is nothing unusual about my inflammatory pattern, and more often than not people who have it are called Crohn's patients. The reality is they are difficult to diagnose because of some of the issues I mentioned.

What worries me when I hear Crohns is the fact the disease involves the entire digestive track. I hear folks who have crohns can develop ulcers in mouth, gut, small intestine as well. How likely is that?

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