Reply to "Abdominal Pain - Possibly from Adhesions"

I would like to offer another possibility for the root of your abdominal pain. I was in the hospital for six days when doctors discovered fluid collecting in my stomach once again. Except this time it was not ascites, which I was successfully treated for a year and a half ago or so.  Radiology discovered five sacs along the lining of my stomach that would fill up with fluid.  The on call colon team felt it was pushing against a section in my small intestine that was already twisted, thus causing pain.  They drained me and I felt significantly better and could go to the bathroom with much ease again.  They decided to schedule a very weird procedure that no one, not even my colon surgeon, has heard of. It was suggested by a gynecologist who originally thought I was filling up with water due to an ovarian cyst (he now doubts that).  He has a patient who is in a similar situation (thank goodness for her!), therefore he was able to help me figure this out!

Within six weeks I filled back up again and by the time my appt came around, I already had 300ml of fluid inside of me again.  I can tell when I fill up because it is harder to go to the bathroom, and my stomach is concave after they drain me. Now I understand why bodybuilders take diuretics before they compete. You can see abs! The procedure is called a CT assisted pelvic cyst drain, I believe, and they go into your pelvic area while you are under twilight anesthesia, drain you, insert some type of liquid to burn the cysts to keep them from filling with water, then after you awaken they roll you around like a rotisserie chicken for a few hours while the liquid does its magic, then you are drained again and good to go home! There's a 30 percent chance the fluid will come back, which in that case they do it again with an even stronger liquid, and again if need be until they knock it out.  This is considered the conservative approach before they decide on surgery.

The bad news is it burns like HELL!  The good news is IV Dilaudid kills most of the pain and knocks you out while they rotisserie chicken turn you on each side.  

It's only been three weeks and I'm waiting to see what happens after my period, and to see if I fill back up with water. So far so good!  I am crossing my fingers and hoping it's successful.  I had hernia surgery for an incisional hernia several weeks ago and will probably have to get a revision because it still pokes out.  If I can knock that out AND not have fluid collect once again, I might have a great 2020!

If you are feeling bloated, you may want to have your doctor schedule a scan to see if you have fluid in the area. I would have never dreamt of such a thing happening because it's so odd.  I joke with my friends that I took out the alien sacs in order to save Earth and that I was almost the Mother of Aliens.

 

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