Reply to "Abdominal Pain - Possibly from Adhesions"

Omg my heart aches for you. I swear to god I’ve been there and I look back and go how did I do this. I stayed 3 months the first time my colon ruptured because everything that went wrong did. I ended up with candida in my whole body double pneumonia etc etc that was in Atlanta. Obstruction after Obstruction the wheels just came off. I made it through by the grace of god. All this was in Atlanta it just kept hitting me I spent basically 10 yrs of my life in and out of hospitals. Long story short I kept saying I have pain on my left side no one would listen plus it didn’t show up on scans. Finally after moving to Charlotte to be with my mom I was bed ridden for 8 months with TPN and home health care j got a massive fistula that came out of my belly button or where my belly button used to be. I made it to Cleveland and they found a microscopic leak in my Jpouch it had walled itself off from the rest of my body so here we go again. They pulled that out and later long story short my third Jpouch was made. I saw Dr. James Church I’m pretty sure he had something to do with inventing the Jpouch he’s from New Zealand he has people from the Middle East coming to see him. They are building a part of Cleveland Clinic over there. I have been fine with my Jpouch but I get structure a lot and was it’s hospitalized for the second time in  6 months I had some kind of fluid in my abdomen. I’m seeing my surgeon here tomorrow he trained under Dr. Church and I’m going to ask him if I need to go back there just to look at all my scans. My surgeon is wonderful but I have only a little bit of small bowel left and I’m just the 1% it’s scary I only trust him and Dr Church. Its like Disney World there for me. What can I do my god I wish I could come be with you. I have all the contacts at Cleveland let me know. I swear I wish I could talk to you I know where you are in your head because when I think of going through that again I think to myself do I have it in me anymore. You will get through and I hate when people say that but I can 😀 because I’ve been there. Please please let me know how I can help you???!!!!!🙏🏻🙏🏻🙏🏻🙏🏻❤️❤️❤️

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