Disney mom
Thanks for getting back with the information . I have been receiving my care from the Johns Hopkins surgeons but I plan to go to New York in. August to See Dr. F. Remzi at N Y U. I had differring opinions about whether to do surgery or not from the Hopkins doctors and I want to see what another doctor thinks. In the meantime the Hopkins surgeons have ordered a barium enema to see if the pouch has any leaks etc. I will post again after both.