I feel like eating smaller meals and intermittent fasting is the only thing keeping me going. Given normal life demands and the hidden nature of what we have going on, we're expected to behave and work like we have a normal body, but if I eat like a normal person needs to, on a normal person's schedule, my body just can't handle it. I eat more when I actually have down time. After any vigorous activity or exercise, I also need to be very careful and wait for things to "wake up."
I swear, it's almost like after 30years of pouch, my small intestines all the way up to my stomach are taking on properties of the large. It's as if they've learned to hold waste like a large intestine because I need them too! It also means constipation can be a serious problem and lead to the ER.