Just Some thoughts:
I think what would help is medical knowledge on how to prevent adhesions from forming in the first place or w hat to do to break them up once they have formed. I can understand why the doctors don't want to do more surgery unless you are in crisis and they have to operate. Adhesion problems can occur after other surgeries but it would be good to know how much higher the rate of adhesion problems are after j pouch surgery and is there anything that can be done prior to,during, or after surgery to prevent them from causing problems. Other abdominal surgeries can cause adhesions including ileostomy surgery but is the risk and By higher when you have jpouch surgery? If the risk is that much higher for jpouch surge rises then that should be explained before surgery.
Has anyone been told to get rid of the jpouch as a solution?
I hate the uncertainty of when these attacks might occur and not having anything that we can do to prevent them from occurring.