I wish we could mobilize these thoughts somehow to communicate to the medical community what it is "actually" like to live with a J pouch and adhesions (and other problems) and find a way to encourage more research in these areas. All the dr.s I have ever met are like "oh yeah, it's fine, you just might need to adjust your diet and go to the bathroom more". Reading on these forums this is so far from the truth most of us live, and it honestly seems like they are oblivious to it and the affect on our quality of life. I wonder if it is a cause the Chrons and Colitis Foundation could take up or advise on.
Sidenote-I just spent a hellish day and night in the ER with more adhesion issues with incredibly uncompassionate doctors. Feeling very beaten down