I have a j-pouch, my surgery was at the end of 2016 and I just started having this pain mid 2018. I’m sorry to hear so many of you are dealing with these challenging issues & I’m thankful for the support & encouragement from all of you too. It’s nice to know I’m not alone in this. I was diagnosed with ulcerative colitis as a kid and I knew I would be dealing with the effects of it for the rest of my life but the issues/challenges that have come from it seem to be getting more and more complicated with time. When I was a kid it was just about avoiding a few foods and taking medication, now it’s random pain that puts me in the ER with no idea how to avoid it. It’s hard but I feel like all I can do is try to make the most of the times when I’m feeling okay and take life one day at a time. I’m really lucky to have a supportive husband and I was able to stop working last year because it became too much with everything I’m dealing with but it makes me think there needs to be a lot more support out there for people dealing with these issues. I often think - what would I do if I were single and had to support myself, it’s really scary! I’m grateful for online communities like this that I can reach out to for advice, suggestions, support & encouragement.