MARJ,
That is a good suggestion to ask for a consult from colorectal surgery and maybe gastroenterology too. I’m sorry you are dealing with this so often, that must be so hard! Also, I agree that it is really hard to work with these kinds of issues going on.
MADDIE18,
My GI doctor thinks that based on everything that’s happened and everything I’ve told him, I have adhesions from jpouch surgery that are causing my small intestine to twist or bend at random and cause some sort of blockage and pain. He thinks this even though so far all of my scans and tests have come back “normal”. He said maybe by the time they do the test it isn’t twisted anymore and basically said that even though this is probably happening it is not necessary going to show up on any kind of imaging they do, especially after the fact since I’m not in severe pain 24/7, it is episodic, that makes it harder to “catch”. That is my understanding anyway.