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Reply to "A note about decorum and how not to be a troll..."

Hi Jan
Its LJK and wanted to ask some questions to you, if you dont mind. first, Have ou ever heard of a jpouch being horizontal instead of vertical? Well mine is horizontal you know sideways. when I try to use the bathroom I am staining to get it out, could that the position of the pouch I have.
Second, I am now 7 weeks out of surgery and I am still having butt burn BAD. I have tried everything from all the ointments to powders, at times I feel as if the powders work a little better. I am still eating bland food afraid that it will return,but I still get it anyway. Am I doing something wrong?
Last I am still having the leakage issues , like I had when she removed my rectum and created my pouch,It seems to only start at night, wellthen I am up all night in pain, its like a acid leakage, it just started recently so again I have no idea what to do? I would really like to get back to life and so far I am not able to do that. I feel that you are very knoelagable about all this stuff, yhis is the reson I am asking you. My procedure was done at the Cleveland Clinic main campus in Ohio. I have already had a major set back, I had an abstruction, oh my not fun had the NG tube again and just find it to be barbaric, its awfull.So if you or anyone else has any advice i would surely appreciate it, I want my life back. Whow knew it would be this difficult! At least for me anyways, I have lost alittlle over 12 lbs. and had an appt. (post-OP) and we my sisrer and I waited in the waiting area for about 20 minutes, but once we were able to go to the treatment room we waited an hour and a half it would have been longer I think if she didnt say anything. I found thattobe very unprofessional our appt was at 4pm and we did not leave till almost 7pm. Thenonce se was in the room I felt very rushed and was not able to clarify things with her wich didnt seem to evenbother her. I just dont like that! when I was in for my abstruction i spent8 days in that place and just before leaving she comes to me saying we may have to do another surgery on you and make the pouch vertical. I was in shock, why didnt she put inthe proper way the first time? These surgeons have no consideration for someoneelses time. can you believe this !!! would love to hear back from you, you can pm me if thats ok with you thank you in advance!! LJK
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