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Reply to "6 YEAR J-POUCH ANNIVERSARY TODAY"

hi lauren

Its nice to communicate with you answer relay message through here back and fourth, i appreciate it

as far as  how many bowel movements i have, its usually 10-12 times a day but honestly i do not let it stop me or count them amt of trips. just an estimate.

i dont know how long i have pouchitis or ibs because prior to the latest scoping which was a flex sig and an ileo-oscopy following while i was sedated already the prior flex sig he did was 1 year ago. The whole covid-019 crisis and  the lock down  we had  delayed  my 6 month check in for both upper and lower scopes.

i had my monthly phone chat with my  gastro today and he said the j-pouch looks fine,  pretty clean/polyps free. My disease has backed off a bit in other words, the pouch tissue looks healthy too however up the ileum during ileooscopy higher up past the jpouch itself within rectal proximity still there are polyps there.  In 4 to 5 months he would like to repeat the flex sig/and ileooscopy scoping so he can re examinine the ileium/tissue to mak ethe call about how the ibs is doing and pouchitis.



in the mean time im waiting for pentasa to come through on my part d drug plan, the proior auth aopproval letters from insurance so i could jump on it and take it.





i consider myself lucky with regards to having had the surgery as a prevent at age 23 so i wouldnt get colorectal cancer and having had a one step and  the fact that i got away with the sub total colectomy and am 19 years post op, that is amazing absolutely in and of itself.



while it may be an odd situation to some that i didnt get a total colectomy , this is possible in some instances depending on the person internally.  i am thankful to god and my surgeon at the time!



concerning junk i dont touch the stuff, i eat pretty healthy, a salad sometimes even twice a day not just once a day everyday with dinner or lunch, i eat very little salt in a day well under 1500 to 2000 most people consume either of those numbers in a day.  and chips are a no no and is diet soda and no candy.



i am a type 2 diabetic for which im unmedicated becaus emy a1x ha sbeen stable in the low to mid 5's.



walk daily twice a day to keep my weight  at 155-160 lbs and limit calories intake and eat less and burn more through walking than from the food calories i consume in a day in total..



i gotta stay doing what i do, diabetes type 2 is tricky, especially as we get older, some day i may require anti diabetic  agents/meds again..



metformin failed me and i developed acute  chronic kidney disease which lead to acute renal failure which require 3 emergency in hospital bedside icu sessions to resolve.  very scary.  i was accumulating fluid/swelling in my body/edema from my kidneys not working effeiciently due to high blood pressure and retaining water/salt in the body.



nobody should go through what i did and in a lifetime  folks much older than me in their life hav enot endured what i have in my 42 soon 43 years of life.



people live a long life and dont go through these problems. so i chose to be careful, watch my diet and  excerise burn calorie sthru the walking i do.



a size 32 waist and 5 feet 5 tall and about 160 is doing me godo as well as looking fantastic in the mirror.



Len

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