october 15th 2001 was my jpouch surgery, so im quite a veteran poucher here who has familial polyposis. so my J turns 19 on the 15th of Oct. I had a 1-step laproscopic sub total colectomy w/ jpouch which was hand assisted (the actual colon removal) my sigmoid colon/entire rectum remains in addition to having a j-pouch fashioned in there. Had a good surgeon, rolando rolandelli back then at temple U here in philly. was one of the best and still is but hasnt been in philly in a godo 15 years or around. has a practice of his own under his name. was at morrestown memorial hospital in atlantic county/morrestown nj but opened own surgical clinic/suite . Highly skilled, great bed side manner.
currently being treated for ibs-d and pouchitis. last flex sig was oct 7th. taking xifaxin for the bacteria issue and inflammatory process 3 x a day and gi do of 20 years has be about to take mesalamine, oral pentasa for frequency/urgency etc and on questran but need to get the lite version which has aspartime in it since im diabetic type 2. i go about 8 to -10 or 13 times a day, with familal polyposis getting pouchitis is not as common or frequent but happens as how often ibd patients can get it. buit this is variable and individual.
my rectum gets frequent scopes twice a year or so as the entire rectum is their and has been retained. i have a sub total colectomy, not a proctocolectomy which is typically how its done.
as long as im being followed continually i shopuldnt develop dysplasia leading to cancer. i had my operation originally propheclatically, i was 23 years old when i was operated. and i weighed over 200 lbs. and im 5 feet 5 tall.
i lost alot of weight for health reasons and to get into shape and made lifestyle changes. 6 months ago i started to work out and walk 2x a day morning and night varyiong 3 to 6-7 miles in total a day within 2 walks combined and broken up. so the key is definitely taking in less calories. Burning more fat and calories and consuming less food. also i drink water like crazy can kill a one gallon jug in a day, daily. minumally my water consumption daily is 3/4s a jug,.
thats my story 