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Reply to "4th Day Home from Colectomy- J-pouch"

I’m sorry you’re having a tough time. So you’re waiting on the doc to get back to you about pain medication? I’d keep calling. It’s a tough road for sure. I remember just crying bc I felt miserable and just so alone. Although my family was there for support and my husband was there to help me through it, it’s just something you can’t really describe to someone bc YOU’RE the one going through it and changing the ostomy bag, and dealing with the leaks, and running to the bathroom, and trying to figure out how to deal with the nausea, etc. Please just know you’re not alone.

When i had my pouch done and had an ostomy initially I signed up for some ostomy forums which was helpful. They gave me some good tips and I felt like people knew what Is as going through. They also have some ostomy support groups you might want to look into. Please know it will get better day by day. Hard to see that now.

In the mean can you try saltines and ginger ale, or they have these ginger drops I used when I was pregnant- you can search for them on Amazon. My visiting nurse would tell me to try not to go too long without a cracker or something bc it would make me feel more sick.

Maybe your doc can give you some reglan or something for the nausea? Is it being caused by a pain med?

Hang in there! This is a tough surgery!

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