It hurts to hear the symptoms and suffering you are having. My large intestine after years of bouts suddenly faired up and a surgeon had to gutted me back in 1995. He said the surgery took more time than he ever had to. Said my colon was extremely inflamed and fell apart in his hands when he was removing it. You my know that crohns and colitis are auto immune disorders. One can reason that some persons with crohns or colitis immune systems` are more over active than others and attack organs to a greater degree. It maybe reasonable that persons with a less than a extremely ulcerated colon and had the J pouch surgery may very well proportionately have less complication post gutting because of the over lying immune systems attack/attacking continuing unless; of course the surgery cured you from a G.I. fysicians` dogmatic point of view. I would recommend looking into seeing an endocrinologist to possibly supplement / double checking your metabolism and endocrinology as it`s effected by the under lying auto immune disorder. You can do some basic research but, I believe that`s what Endocrinologists do. That would be great to get one to work with a GI doc. Can`t cure the under lying auto immune disordered but might find as a example ( as an example only because I am a lay person with no credentials ) thyroid levels and such that need to be brought to within more normal levels because of the way that organ is being effected also. It hurts knowing what you going through. The main suspected causes like pouchitis and others that I am assuming that you are well aware of and, all the meds and, doctors trying treatments is what some of us go through. I had a lot of stress from three different sources for a prolonged period that precipitated me needing to be gutted. Stress can cause a heighten immune responses and it was Bing Bag Bomb and I was going through that. I guess some cannabiod oil applied under the tung have helped with flare ups. It`s so unfair . I hope a few little things can help turn the major symptoms/problem around for you.