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4 Months Post surgery

I had my final j-pouch surgery in November 2017. I am now 4 almost 5 months post surgery and I feel as though I have not improved any since my surgery. I am having on average 10-12 bowel movements a day. I wake up at least 3-4 times a night due to bowel movements. I have constant spasming in my rectum. I get stomach cramping and bloating almost every time I eat. And I am in constant pain. My surgeon ran out of ideas so she sent me to a GI doctor to see if he had any ideas. They’ve suggested benefiber, enteragam (medical food), probiotics, hydrocortisone cream to be inserted rectally. I can’t seem to find any relief with anything. I am already taking 8 Imodium a day and 4 lomotil a day so I am on the max dose of both of those. I have tried both bentyl and donatal for the cramping and spasming and nothing is working. I feel as though my symptoms are worse now than when I had the colitis. And that is saying a lot considering my entire large intestine was infected and unresponsive to any treatment options. My doctors keep telling me that it could take up to a year for my body to become used to the pouch. But I am slowly losing hope. This surgery was suppose to improve my quality of life. But instead I just sit here wishing I could have my life back. 

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