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Reply to "34 y/o j pouch failing! Surgical options?"

my understanding of how VSL works is that one needs to be in remission.  I was using four packets a day and even with diet couldn’t control the pouchitis.  was never able to get off of antibiotics and subsequently became refractory. that lead to incontinence and a nasty spiral into social exclusion, at least for a bit. 

after the K i started to have problems with dehydration, but am now figuring out how to deal with it better.   I take sulfur tabs.

Once I had cut out refined sugar I never went back. It’s been 10 years. Can’t tolerate the taste. Also when eliminated and no longer see blood in your stool you have positive reinforcement for not consuming any.   for me caffeine was not a trigger. As I said scallops were.    keep experimenting and find out what works for you. Have you tried Augmentin for an antibiotic? You might be able to switch onto it for a while and give Flagyl a break. That said, long-term antibiotics – – despite my doctor is keeping me on them for 15 years – – is not healthy in my opinion. 

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