seanbo1001 posted:I am 53 y/o, 34 years now with j-pouch with 16 BM's with urgency per day as primary problem. I realize I've had a pretty good long run with this j-pouch. Pouchitis is apparently not treatable at this point after many years of antibiotics, etc. No real pain issues but doc now tells me the ongoing inflammation in pouch is increasing CA risk. Tired of searching for next bathroom! Considering surgical options now and am looking for any advice you all have. I understand j pouch removal can be very difficult. Also, I'm told by my GI doc that a new j pouch can be built possibly. I'm open to all options at this point in my life, even ileostomy bag if it's best and safest. I'm concerned about more loss of small bowel as I already have dehydration issues. I am very active working out or running 8-10 hrs per week. Thank you so much for your help!
How long did you get with your j-pouch when you could functional normally (I.e, work without running to the bathroom 24-7, going boating etc)?