I am not a 30 year veteran jpouch yet but am living 19 years with a jpouch from having familial adenomatous polyposis as the reason for colectomy
That said my gastroenterologist of 19 years spoke of budenoside/endocort pills in the form of 9 milligrams one pill daily as I also carry. Two separate/additional diagnosis that are awaiting my part d silver script Medicare prior authorizations so they can be filled.
Did you ever gain steroid weight from the drug? Did it cause moon face? I let my gastro know i don't want to go on immunisuppresssives/steroid meds fir the reason of diet modification/my weight loss journey. . at 160 lbs 5 feet tall and used to eat wrong and weighed heavily 240 lbs was my previous weight 8-10 months ago.
He stated 9 milligrams daily for a 2 month treatment course to treat my ibs-d and microscopic colitis shouldn't effect my weight gain wise.
I expressed to him. lets try me on 5asa mesalimine 2x a day which is not a steroid because im not comfy with prednisone like meds/budenoside.
That said, im curious what yours and others experiences are/were. I have microscopic colitis and irritable bowel syndrome with diaarhea everything should respond to IBD like meds that folks take for other forms of IBD like ulcerative colitis and crohns.
Don't want to make you feel @ycrockpot that I hijacked your thread so hope you dont feel that way.
Best Wishes!
Len