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Reply to "30 Years with FAP"

Hi Laura, Because I currently am dealing with a family emergency, I am going to do a quick reply just now. Then when I have more time, I shall do more detailed response. 

My quick answer in go for the pouch, things have greatly improved in that department In The last ten years. Then as you will have a temporary stoma for a while, before take down is done, you will have gained experience of living with a stoma and how you feel about that. The option of a permanent stoma is always an option for the future, if necessary. If you are in Uk only go to St Marks, or there is another good place in Edinburgh. If else wear in the world I will give you my knowledge of others later. I hope I get to explain more before your surgery, if not I can still speak to after. It can be a long and difficult journey after Pouch surgery. But worth the time in the long run. 

I will be out of internet coverage for maybe a week, but let’s stay in contact when I am back on line. I have much more info that may help. Also I would be grateful to share and help anyone in our situation. 

Sorry so brief but family calls.

Chat soon

Regards Rachel x

 

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