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Reply to "30 year + pouchers"

I have had my pouch 33 years. I have had the good as well as the bad. I was told by doctors that i am the 13 person and the 1st female to have this type of surgery. In fact the ostomy nurse told me there was no such thing as a reversal. I had asn acute onset of UC and a toxic megacolon which usally happens to men. I have had my pouch re-stapled due to it falling down. I have all the sasme food triggers as everyone else. I had joined yhe crones and colitis groups but they had no idea of the issues i was having. Then i saw this group. I know you all understand. My current issue is sudden evacuation before i can get into a restroom. Mainly when walking. But it happens at other times as well. Anyone else have this problem? Curious

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