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Reply to "30 year + pouchers"

The first several years after my pouch surgery in 1985, I had a number of pouchitis bouts. At the time I took Bactrim but after a while found that didn’t work anymore. Then I went onto flagyl but that caused numbness in my fingers so I discontinued it. I also tried VSL but it did not work for me at all.

Then I went on cipro (500mg - not 250mg as I mistakenly previously stated) once per day and it is a low enough dose to keep the bad bacteria in check while not upsetting my stomach at all. Over the past 20 years my pouchitis has been very rare and when I do get it - it responds immediately to a Zithpack. I have maybe 5 bm per day. Not sure if others would respond to cipro as I have but that’s where I am.

 

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