Sorry to hear! I would look up "My doctor knows me best from behind" on Facebook. The lady that runs that page, I think her name is Cherise, has an ostomy and does tons of videos and I believe she is also an ostomy nurse but not 100% on that. might be rumor I heard. I looked her up when I was going to get a jpouch with a temp ileo.
June is FAP month? That is crazy anyone would even say that. Also it is a rare disease, but 30% of us get it with no family history. It comes from the father's mutation of the APC gene. It is a crap disease. I now have severe dysplasia in another part of my GI tract since the polyps got pissed my colon was gone.
There is a good site called Meet an Ostomate.com and it isn't a dating site even though some might use it to meet other ostomates but it has a good amount of people you can connect to on forums and you can search by location. They might have people on there willing to meet you and help you out. It is pretty active site and I have had great support on there offered if I needed it in person. Google Ostomy support groups in your area as well. Learn a lot from in person groups. A Cancer center in your area should have some information on this I would think. That sucks your after care sucks. Some people just shouldn't be in the medical field. I fire people all the time!