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Reply to "26 year old female- trying to navigate my way through all this. Any help appreciated!"

This is totally insane what has happened to you. And the longer you are without a good functioning appliance system, the worse your skin gets, and then things just become more complicated.

So Here's a few ideas I can think of: try to call the hospital where you were in and ask to speak to an ostomy nurse. Also try calling your surgeons office and see if they have an ostomy nurse on staff. Also do you have a GI doctor? If so, call them, some of them have ostomy nurses on staff. See if there is a UOAA group in your area. If so call them and see if they can refer you to somebody. Also call the home health organization that you were sent home with and see if they actually have an ostomy nurse on staff. In my case.. with my first ostomy ... they sent me a home health nurse that knew absolutely nothing about an ostomy because the only ostomy nurse they had was "busy."
Another last idea I have is call someplace like the cleveland clinic (go to the colorectal surgery department extensions) (they have a large staff of ostomy nurses) and see if they can refer you to someone local. I think there is some organization that certifies these nurses - they are called ET or WOCN nurses. See if you can find that.
Oh... last thing contact some of the major suppliers - coloplast, hollister.. And speak to them. They generally have nurses on staff and they will send you sample supplies.
good luck.
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