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Reply to "18 years later"

I had a similar issue in childhood (and after contracting UC), although it was later determined to be a genetic issue. The pain was due to my urethra being too narrow. I had a surgery to widen it. Ironically my sister had to have the same surgery done for the same reason and she never had UC. As IBD patients we hear the term “stricture” - to my understanding what the problem was is that my urtethra, genetically, was not wide enough to accommodate the urinary traffic going out. So I guess it was a stricture of some kind.

In adulthood, I ran into a similar problem with sinus infections and an ENT doctor told me the passage from my sinuses to throat was way, way narrower than normal. As a result, drainage was improper/clogged resulting in repeated sinus infections and headaches.  I also had surgery to widen the sinus passage and this issue, like the penile issue, was surgically corrected.

I don’t know if a structural issue with the urethra is the problem but a good urologist should be able to figure it out. Such an issue would cause UTIs, and pain. Could also be a kidney stone or stones, which persons with IBD surgery like your son had are at risk for. I never had one but my surgeon told me we J Pouchers are at higher risk for them.

Last edited by CTBarrister
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