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Reply to "12-year old son - decision on colectomy & j-pouch"

Hi, I am new to this blog and so glad to have found it!  My 17 year old son is having his colon removed this week.  He will have the 3-part surgeries starting with the colectomy and ostomy bag.  He was diagnosed April 16th after a colonoscopy and put in the hospital on April 18th which is where he remains until surgery.  This was his 1st flare.  We were hoping the different meds would put him into remission with no avail.  He has been on steroids, Remicade (3 doses), Prograf and Cyclosporine.  Because of his age, he was limited to the drug choices.  However, as parents, we pushed for additional opinions from the adult doctors since he is months away from being an adult.  He also had a CMV infection which he was treated for during this hospital stay.  He is looking forward to the surgery.  I appreciate all of the feedback to this post.  It has helped us with our decision and gives us insight to possible future concerns.

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