Reply to "12-year old son - decision on colectomy & j-pouch"

JeffsmomMember

Wow! What a nightmare. I completely understand. My son was diagnosed at age 6 with UC. He was 23 when he had his colonectomy. Prednisone is not a great medication for young kids. It can stunt growth, as I am Sure you know. It’s great that you have seen all these specialists. Are you from NJ? We live outside of Princeton. You need to do what is best for your son. I’m not a big fan of the biologics for kids. I think they are too new and not well researched. Just my opinion, not based on any fact. Having a colonectomy does present difficulties. And you are correct, your son is too young to fully grasp all the problems there. My son had better quality of life before the colonectomy. He has had a boatload of issues since having it. I think you need to follow your heart and gut. Find a doctor that you completely trust and go with that. There are risks to all. Good luck! And hugs to your son.

dianne

6/17/1811:33 PM

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