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Reply to "12-year old son - decision on colectomy & j-pouch"

Cure, my son was 23, had his surgery in June, 2014.  The doctor was at Robert Wood Johnson Medical school in New Brunswick, NJ.  He is now in VA.  I would make the same decision because Jeffrey was full of pre-cancer polyps and they will quickly turn to cancer is we did nothing.  At the time,  biologics were not an option.  However, we are looking into them now.  I’m not sure how I feel about the. Because some of them are so new and I do not feel are adequately researched.  Just my opinion.  Jeffreynis now being treated at Weill Cornell in NYC. He as a great team of doctors that I would highly recommend, but you have great people in the DC area as well.  When Jeffrey had his first Ostomy, he did not hand,e it well at all.  He also has Aspergers so that is an additional issue, so that’s why he did not handle the Ostomy well.  He had his take down surgery in September.  His surgery was done in 2 steps.  And then the complications began. It’s a long involved situation.  But he is just about ready to go to a permanent Ostomy because of so issues he is having.  But living with the Ostomy is not so horrible.  So many young kids do very well because they are healthy for the first time in a long time.  A lot has to do with how you handle it.  It you embrace it, live by the saying, it could always be worse, and Your can do anything you want to do in life, he would be fine.  If you cry about it, make him feel Ike he is different, and look at it as the world is coming to an end, then he will not do well.  Attitude is so important. But don’t make him feel like he is different.  He is not.  Everyone has something.  Keep it all positive.  And always find the silver lining, no matter how bad the day is!  Good luck to all of you!  If you want any more information, just let me know!

dianne

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