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Reply to "1 Week post-takedown. Feeling really discouraged."

Hello, 

I'm 25 and just had my takedown surgery 2 weeks ago. Yes, I know it's early, but I've been set back from the beginning. My 2nd surgery to form my Jpouch I had a full ileus with the NG tube for a week. Knowing this, my takedown surgery caused a partial ileus so I had the distention, could not eat and tons of pain. They sent me home with a partial ileus still. So it took me a week after surgery to eat any solids for the first time. Since then I have had absolutely excruciating pains in my abdomen and bum at the same time. I have uncontrollable spasms in both places as well, much like when my Ulcerative Colitis was at its' worst. I strain and spasm so frequently but nothing seems to come out but just enough to annoyingly have to wipe. I know I should be going to the bathroom frequently but I honestly only go twice a day and battle the pains, gas, pressure, straining and feeling of "needing" to go but can't. My surgeon claimed it's because I am considered "Type A Personality" and can not relax. I was told with having my UC bad for so many years (2010-colon removal in August 2016) that my brain trained my sphincter to never relax so it would not cause an accident. Therefore, causing the "no no no no don't go" to happen all day long until I can finally relax enough to fully go to the bathroom. I eat pretty healthy, always have, and drink plenty G2. I am fighting the gas more than anything along with the spasms. Simethicone does not help me whatsoever and Metamucil has always caused gas problems for me. I know they say water soluble fiber for bulking but without a colon the function is pointless. Insoluble seems to bulk too quickly and causes me to spasm before I even finish the glass. The "butt burn" is out of control. I went home with the Cleveland Clinic Skin Protective Paste, also purchased Triple Paste, Aloe Vesta and pure cortisone cream and absolutely none of them help. My surgeon has stretched me a few times at my follow up appointments but this last appointment today she said I was barely strictured so she wasn't sure why I couldn't go to the bathroom. Has anyone else struggled with not being able to go vs going too frequently? Any suggestions for gas? I also take probiotics. I have a "mom nurse" who overseas and also went to nursing school myself. I'm struggling with this reversal and am searching for advice. Please and thank you!

-Victoria

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