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Reply to "1 Week post-takedown. Feeling really discouraged."

although it has been 26 years since my surgery,  I remember well those first post op months.  It's like the pouch has to learn its function.  You have to learn what foods agree/disagree. It is such a learning process.  Back then, I remember it felt like I had to go to the bathroom every 20 min.  My docs told me to try and put it off as long as I could.  Back then, there was no internet, no support.  I called my doc - - I was so disheartened.  He said it would get better at 6 months and at a year I would be even better.  he was right.  Things did get better.  I won't kid you; it was a rough ride for a while! My thoughts go out to you and here are some things that worked for me:  When in doubt check with your doc first!!!

(1)  I kept a food diary.  I added different foods gradually to see what agreed or disagreed.

(2) Perianal skin care was very important.  I even carried supplies in a bag in my purse to use when I was out. Ointments (Hemmorrhoid ointment works for me just applied to the outer skin)   Perianal pads (soft cotton  shaped like a butterfly that wicked the moisture and caustic stuff away from my skin)   I used a portable bidet at home so I could keep really clean really fast)    Ok don't laugh - - I used a hairblower at home to dry my skin really well before applying ointment and pad.

3.  I can not say enough good things about cultured Bulgarian buttermilk. A glass of that makes my J Pouch a happy camper.

4.  Metamucil helps bulk up my stool.  Immodium helps slows my gut down. I only take it now on an as needed basis. 

5. having a supportive family.  We would be in a store, and if I told my husband I had to find a bathroom he was cool!!!  Oh and in the beginning it seems it took me a long time in the bathroom.  I think I couldn't  tell when I was through. He was so patient!!!  Now  I zip in and out of the bathroom in no time at all.

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Hang in there!!!  What is that saying?   When you feel you are at the end of your rope, tie a knot and keep on swinging.    and know there is always someone here to listen.  Every question is important!

 

 

 

 

 

 

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