Activity

Reply by Bloke

Hi Stephanie. Everything went just fine. Other than some tiredness I feel good. No other side effects that I can tell. The other meds...
Bloke

Reply by jan15

i have to take 6-8 daily for them to be effective and take for about two weeks before any effect. then every day. expensive, but...

Reply by ToothFairy

Thanks Kim S! I will definitely try to see if a certain food is the problem. Thanks Jan15! I purchased those years ago; but I never took...

Reply by jan15

i use a nursing pad, stuck on my underpants. if it smells i replace it. another approach is to decrease your output smell with Devrom.

Reply by Kim S

A food diary would probably be a good idea. Sometimes I notice output from eating the same exact foods can be more odorous if I’ve eaten...

Reply by GrannyJ64

I have had 6 adhesion surgeries...two of them also required resections... they buy you a little time but a vicious cycle because you get...
GrannyJ64

Reply by ToothFairy

Thanks for responding! The only medication is Stelara; however I noticed the odor before the injections. I am not sure if it’s food...

Reply by Kim S

Are you taking any medication? Or perhaps it could be from a certain food?

Reply by Scott F

The scar tissue is outside the gut, attaching to to the abdominal wall or other sections of intestine. I’d be skeptical about enzymes...
Scott F

Reply by Scott F

There are two different surgical techniques that can be used. The more common stapled method attaches the J-pouch to a short rectal...
Scott F

Reply by Nara

I believe there are some natural methods which can help in adhesions and scar tissue Serrapeptase is one enzyme known but I do my own...

Reply by Scott F

Marj, both surgeons are offering reasonable paths, neither of which is perfect. The correct path is mostly about how you feel about...
Scott F

Reply by Jaypea

I guess there is always the risk that any abdominal surgery will simply cause more adhesions to form. My surgeon reminded me of this...

Reply by Marj

Thank you for responding. I have had 2 previous surgeries for adhesions. After the. First surgery I was symptom free for 4 years but...

Reply by Jaypea

Yes. I just had this surgery in March as my small bowel obstructions we’re landing me in the hospital once or twice a month. Apparently...

Reply by Bobish

I didn't even try to sit for the first 4 weeks, just lying or hunched standing. After that I was in a hard chair (couldn't handle a...
Bobish

Reply by Bobish

Marj, it's always best to learn from yourself rather than follow someone else's diet suggestions (even a doctor's) everyone is different...
Bobish

Reply by Francesca

Hi Marj i haven’t had any food allergy testing but I know from personal experience that milk and ice cream don’t agree with my jpouche.
Francesca

Reply by capper

Hi folks. Just an update. Infusion #1 - 2 weeks ago. Never noticed any side effects or a change in symptoms. Infusion #2 - today. The...

Reply by Andrina

That's what I was thinking that's why I figured I didn't have a blockage because I kept on having bm's and they never stopped. That...

Reply by Scott F

Rifaximin never worked for me at all, even with adequate doses. That’s mostly why I suggested that you might want to try it on your own...
Scott F

Reply by CTBarrister

Yes, that is essentially correct but I will explain. I have a group health plan with Anthem Blue Cross/Blue Shield that has a $5000...
CTBarrister

Reply by BlueFlame

So, are you saying Xifaxan worked for you/didn't stop working....but insurance wouldn't cover the amount you needed....and instead...

Reply by CTBarrister

Blueflame, I have about 4-6 BMs a day, sometimes more depending on what and how much I eat. I have used Xifaxan 550 mg x2 in the past.
CTBarrister

Reply by BlueFlame

Scott, if I recall you were on rifaximin and it stopped working? What do you take now and did you ever develop ulcerations?

Reply by BlueFlame

Scott, agreed. I was thinking the same. Getting Xifaxan at all required an appeal after a trial with cipro and flagyl.

Reply by Scott F

Although some residual inflammation may persist, I’d try like heck to find a treatment that got rid of ulcerations. 200 mg of Xifaxan...
Scott F

Reply by CTBarrister

The prep sucks, but it’s also a long test. Post back after you get the results. Good luck with it.
CTBarrister

Reply by CTBarrister

Pretty much none. My quality of life is very good. Very occasionally at the end of a cycle before my next Remicade infusion I will get a...
CTBarrister

Reply by Aimc

Awesome to hear accept it. Keep it up. And thanks for posting. It helps us all to read about long term successes.
Aimc

Reply by Aimc

Gas can be very painful with a new pouch. Hard to tell it from a blockage. Unfortunately we are all different, so what works for one my...
Aimc
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