Activity

Reply by Jaypea

They are by P&G. “Always” extra protection daily liners. They have a very cool surface that wicks the moisture into the pad and away...

Reply by Lori W

Agreed, Scott. I don't care what it's called either....just want it gone!!!

Reply by Scott F

Backwash ileitis is always above the pouch. It sounds like whatever you have is well-controlled by Cipro, but only while you’re taking...
Scott F

Reply by Lori W

Thanks so much for the replies already. This all started back in August when an orthopedic doctor prescribed a medication called...

Reply by WBrooks

I actually do have a heating pad. I got one last summer after a fairly painful and long blockage and it did seem to help. I’m just...
WBrooks

Reply by Still Standing

Re: Advice
My pouch is 12 years old and I remember having to have a Barium Enema to check for leaks before my second surgery. Its not comfortable,...

Reply by Burd

Re: Advice
Hi Nick, I have had my J-pouch since 1987-88. The first time my doctor tried to reverse from the bag to my pouch...I had to wait a few...

Reply by Burd

Thank you for the recommendation. I will try and work on “those muscles!” what are the pads that you have found that work for you?

Reply by Bubba1028

In my experience, I’ve had two partial blockages, it takes time for your muscles and intestines to recover. I think someone explained to...

Reply by Bobish

not used it for pouch, but have been on qxci machine twice before and was very impressed. The insight it have me was incredible. I'd say...
Bobish

Reply by Nick10136

Re: Advice
All: Thank you for the feedback. I had an appointment with my surgeon and he is going to do the reversal on Feb 8th. However he is...

Reply by Former Member

Thanks, but unfortunately I have state Medicaid insurance and they refuse to pay for it. So this is my last resort.

Reply by tf

Its great to hear your progress is going good. I am sure it is alot to deal with and not fast recovery. I have a J pouch for 5 years and...
tf

Reply by Accept It

Hi Lori, I am 59 years old and have had my j pouch for 33 years. I began to have symptoms similar to yours. Was told by a colo- rectal...

Reply by Jfill21

I'm doing biofeedback and pelvic floor therapy now, and have been going every week since October. I think it's working, if nothing else,...

Reply by Scott F

Lori, I’m sorry you’re dealing with this. If this inflammation is limited to the area close to the J-pouch then it could simply be...
Scott F

Reply by Grant Wiseman

I just saw him in November and he suggested the same thing. I am having trouble getting insurance to cover it.

Reply by Jaypea

Have you tried pelvic floor exercises like kegals? Maybe those rectal muscles could use a bit of toning? I currently have a seton drain...

Reply by AI_matrix

Re: CBD
Ah, I see! I tried the select product but never really liked it as much. For me, it's all about dosages. Peridot's products is good one...
AI_matrix

Reply by Scott F

BMarie, it may be worth appealing this insurance company decision, based on medical necessity. Repairing J-pouches isn’t routine...
Scott F

Reply by Burd

Thank you Scott for your reply. I am taking a probiotic powder...HLC High Potency Powder. Pouchitis might be a factor...but I feel so...

Reply by Burd

Hi NA Gosh ... I am new to this group. Loved your “post!” I have had my J-pouch for 30 years. I am having more problems these days.

Reply by Aimc

N/A so glad to hear you are doing so well. Hope you continue to heal at your remarkablely good pace. Just remember if you have problems...
Aimc

Reply by n/a

Thought I'd update -- today it is 10 weeks out from my jpouch removal. Things have been improving steadily, and I think I'm doing pretty...
n/a

Reply by d_bergman

All I can say is that I'm jealous of everyone's # of bathroom visits. I'm at the far end with - 10 visits per day + 2 at night. After 4...

New Member

Kjg

Reply by tulsamom

I hadn't thought of that. Things do seem different than before my rare case of pouchitis I was treated for a couple months ago. Thank...

Reply by happytimes

Are you sure you don't have pouchitis? I had cramping etc every time I ate when I had pouchitis. The partial obstructions etc felt...

Reply by strange

Re: Advice
I've never endured the butt burn, although I did experience skin errosion around my stoma, which was alleviated by the application of...
strange

Reply by Jaypea

Re: Advice
I had my reversal 5 years ago. I wore briefs to bed for a few months as my body took some time to learn that I could not pass gas...

Reply by lina

I don't have an experience to share, but I am also 39 and have been hoping to have my first child. My first surgery was an emergency...
lina

Reply by strange

Re: Advice
I'm 22 years younger than yourself and during my time with the temp loop ileostomy I had the same concerns; I think I took up to 6...
strange

Reply by maddie18

I take super enzymes by Now for the feeling of an upcoming obstruction. It helps break down the food so it can pass.

Reply by JanW2

Re: C-diff
Hi, 🥳 Happy NewYear, Well I had the fecal transplant on Thursday. The procedure went well, the Dr went through the Kpouch, not usually...

New Member

Reply by msh98991

I am nearing my 9th year post takedown. As most have mentioned, frequency is dependent on how much I eat and what I eat. Most days I’d...

Reply by rebel

Hi POUCHYTX 'May take several months to find out what my new normal is' that does sound sensible; surgery of any type will 'disrupt' the...

Reply by Momofthree

I would recommend a visit to your doctor. Have you ever had a fistula? They are painful and feel inflamed all the time.

Reply by PouchyTX

Saw my colorectal surgeon yesterday. He explained that it may take several months to find out what my new normal is. In the meantime I’m...
PouchyTX

Reply by PouchyTX

Re: CBD
I like Highern chef and Select.
PouchyTX

Reply by AI_matrix

Re: CBD
What is the name of the product of CBD you use?
AI_matrix

Reply by AllyKat

Entyvio can cause what your describing. I have it too. On my support group it’s very common, we just work thru it. It can take a while...
AllyKat

Reply by AllyKat

Omg that is terrible. Yes I’ve seen a picture of my pouch and it does show somewhat of a “j” My surgeon is Dr Milsom over at Cornel NYC...
AllyKat

Reply by ljk

Would you mind telling me who your surgeon is? Boy you have been through a lot too! So do you have a j-pouch or ileostomy? Are you able...

Reply by ljk

Entyvio did nothing for me except a large medical bill!!!

Reply by AllyKat

Just your Dr office visit co pay Entyvio is fully covered
AllyKat

Reply by Scott F

Joey, you can’t know in advance if it will help, but it’s pretty clear that the current perspective you’re getting is unsatisfactory.
Scott F

Reply by Joey A

I've gathered all of my records from 1994-present, and it's a BIG pile of papers! At the University of Rochester, there is a IBD Center...

Reply by Dyna

I’m on Medicare anybody know how much it would cost me?

Reply by PouchLogic

I definitely notice decreased cramps, I also find my urgency goes away and helps to reduce my number of bowel movements a day. I also...

Reply by Pouchbro

I misread the original post, I did not realize that your pouch is 23 years old. I doubt it is a leak, however it sounds so similar to...

Reply by Scott F

Joey- Sed rates alone aren’t very helpful, but your deep, burning pain isn’t normal, and they may well be related. Does the pain always...
Scott F

Reply by Joey A

Hi everyone, I'm the original poster regarding this topic. Just an update...please stay with me. I've had my pouch since 1995. There...
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