Activity

Reply by RedRocker

I don’t use any lube, just dip in water. Also, I cut up mini pads into 3s (all natural, no bleach) makes 90 pads for $2.50. I drain...
RedRocker

Reply by Winterberry

The inside of the pouch is an open reservoir. Like a balloon. The seam, or stitching, seen in your posted diagram is only to show where...
Winterberry

Reply by Aimc

Hi AngieB. Could you clarify what you mean by anal pressure and cramping? Does it feel as though you aren't emptying your pouch? Like...
Aimc

Reply by Scott F

A knowledgeable GI is usually the best bet. Some surgeons prefer to follow their own patients long-term, but I think that’s a minority.
Scott F

Reply by pammieskrh

I just came across this older thread. I am currently at NYC under Dr. Remzi's care. I had a j pouch redo last Thursday and am going home...

Reply by Andrina

Was it Benefiber by chance? How much anti-diarrheal have you taken? I don't have any advise for you as I don't have a j-pouch yet.

Reply by dmmck

OK you all are scarying me...... I had 3 surgeries in 2018 and now have a J-Pouch. I was told that I may get pouchitis, which I have had...

Reply by Andrina

Thank you for this topic, the video and explanations. I'm always interested in the physiology of the j-pouch and I wondered the same...

Reply by dmmck

Thanks for the reply. It makes me feel not so alone. I also did get approved for SSD, but they denied back pay. So, I have a lawyer now,...

Reply by Maria410

Re: Aching
Thanks Scott F. I didn’t think so. I was wondering if it could be muscular/ nerve pain as I’m always slightly clenching because of the...
Maria410

Reply by Scott F

Re: Aching
This doesn’t sound like pouchitis to me. It might be an abscess in a particularly inconvenient location. A less likely possibility, I...
Scott F

Reply by ytcrockpot

I have, I had to get a lawyer, took 2-1/2yrs to get, but we’ll worth it

Reply by Winterberry

Hi, Cajundoc. I searched for a post I made here in 2016 with the video attached but couldn't find it on this site. If you go on YouTube...
Winterberry

Reply by Angieb

Omg I am so on board with the person who said would not go back to a iliostomy if paid. Although my pouch is not perfect I could not go...
Angieb

Reply by Weda

Thanks Rina, I have accepted the fact of having an ileostomy. I just don't want to have the surgery without removing the j-pouch which I...

Reply by Winterberry

Yes, the j pouch is a true pouch. It is hollow inside. When your small intestine was looped to form a "J" an instrument was inserted...
Winterberry

Reply by Scott F

I think this would normally be called a pouchogram. Make sure they don’t try to put a whole colon’s worth of barium into you. A J-pouch...
Scott F

Reply by RinaJP

I feel like there is a “breaking point” that at some point when the only avenue is the ileostomy, it’s easier to accept. Due to where my...
RinaJP

Reply by Andrina

I hope that it doesn't come to that for you and that you find something that makes your jpouch work better!

Reply by Kushami

My j-pouch is not functioning well at all now (it was good for 15 year) but I am holding out against going to an ileostomy. I had a lot...

Reply by Aimc

Hi cajundoc. According to Wikipedia, the inner walls are removed to form the pouch. Good question. I certainly didn't know. Aimee
Aimc

Reply by BillV

Here is a thought since you are concerned about J pouch removal. The surgeon who removed my J pouch was Dr. Ernest Rehnke in St.
BillV

Reply by Weda

Thank you so much for your response. It Is very helpful. Can you tell me what kind of problems you had with the j-pouch after it was...

Reply by tf

Hi, I totally relate to you. I have never been able eat what I want. I have to refuse many dinner invites because eating out is a...
tf

Reply by BillV

Although I did not opt to get an ileostomy when my J pouch needed to be removed, perhaps relating my experience would be helpful. I had...
BillV

Reply by Weda

I am now considering going back to an ileostomy. I have to make this decision which has been recommended by two different colon and...

Reply by Andrina

Thank you. He left my cuff

Reply by Scott F

The usual surgery attaches the J-pouch to the rectal cuff using a circular stapler. The less common approach removes the rectal cuff and...
Scott F

Reply by Andrina

I have another question. You know when we had a colon sometimes we pressed too hard and might have caused an anal fissure or something...

Reply by Raj

I too get blocked sometimes and man it hurts , hurts like hell no matter how much pressure you put on the seat nothing seems to move out...

Reply by Raj

Yeah fiber supps do increase bms and gas too. I usually take it with breakfast and dinner and get a mixed response. I started from 2-2...

Reply by Scott F

It sounds like you might do better with a different fiber supplement. The usual choices are psyllium (of one brand or another),...
Scott F

Reply by Scott F

FIber supplements can sometimes cause gas, and that can also increase frequency and/or discomfort. Do you have more gas than before?
Scott F

Reply by Arnaud

I've solved emptying problems with a Medina catheter. A friend of mine actually wrote a web site about it, here :...

Reply by arodecker

Yes and no on the consistency. For the most part I have great looking stool. Right now Iam going 4x as many times as I use to before the...

Reply by Scott F

Fiber supplements will add bulk to the stool. For some people this could increase frequency. Is it changing the consistency of your...
Scott F

Reply by strange

I've found ilex paste applied internally really works; for myself, when a fissure occurs, I'm able to determine its exact location...
strange

Reply by DSTJ

Prouchbro, to add to Scott's reply, if you want to read more about the lawsuit you can take a look at an article on Visbiome's website:...

Reply by Scott F

The current VSL #3 formula has apparently never been tested at all, though they claim to be doing some tests. It hasn’t been proven to...
Scott F

Reply by Scott F

You might be superstitious about foods. “Paranoid” is a pretty strong word. Here’s some stuff to think about: 1) Food has an effect on...
Scott F

Reply by Pouchbro

I want to know which Probiotic formula was used in the study thats shows "VSL# 3" is the proven probiotic that helps with UC. Was it the...
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