Activity

Reply by CTB23

Yes, you will do fine. To be honest, at the time I was getting ready for my final surgery, I was more concerned then with my previous...

Reply by Andrina

Thank you. I think this surgery is the most emotional for me. Taking out my colon was nothing. It was a relief in fact. This time my...

Reply by Aimc

Andrina, remember when you first got your stoma? I remember I didn't think I'd ever be able to take care of it properly. In about a...
Aimc

Reply by Andrina

If I don't have to pack it but just cover it up that would be nice but I know this surgeon will want me to pack it

Reply by Aimc

Andrina, you will do fine. I did not have home health care after my last surgery either. I took care of it on my own. It heeled nicely.
Aimc

Reply by Andrina

I already asked about a home nurse they said no. Even the ostomy and wound care is not a wound care for previous stoma sites I asked...

Reply by Scott F

There are lots of perfectly reasonable ways to manage wound care, grounded in medicine, culture, and individual patient circumstances.
Scott F

Reply by strange

My J Pouch and takedown surgery was performed by an eminent Surgeon and his Team at St Marks Hospital, Harrow, London, where J pouch...
strange

Reply by girlunky

I did not have a wound care nurse after takedown. My surgeon instructed me to remove the dressing and shower 2x a day , not touching the...

Reply by CTB23

I did not have a home nurse for my last surgery. My surgeon used steri strips to close the site and pads to cover it. I replaced the...

Reply by strange

After my takedown, my Surgeon said the wound (old stoma site) mustn't be packed (he was insistent on this) but cleansed daily and...
strange

Reply by Sunflower70

Hi. Sorry to hear of your troubles. Here are a few ideas: - If it's pouchitis that didn't resolve with Cipro, you could try the VSL3...

Reply by n/a

Re: heat
Heat hasn't upset my barrier too much, but when I get itchy under the tape part of it, I squirt a tiny bit of nasacort on my fingers,...
n/a

Reply by PouchLogic

If you haven't tried vsl3 or Visbiome yet you may find relief and not need to be on antibiotics long term. I have managed to stop taking...

Reply by PouchLogic

Re: heat
I found after having a jpouch I don't tolerate the heat as well as I used to in general.

Reply by Scott F

VSL isn’t discontinued, but it’s very hard to find now. Sam’s Club still can get it for me, but that was the eighth pharmacy I called.
Scott F

Reply by maddie18

VSL#3 I was prescribed to me along with the Cipro and the Flagyl but I've heard it is discontinued. Where do you get it from Scott? I...

Reply by Scott F

I’ve been on Cipro almost continuously since 2009. I carefully experimented to find the lowest effective dose, and discovered that...
Scott F

Reply by maddie18

I have the same issue. I seem to calm down on antibiotics but then flare up a few days after taking them . However, I am now on flagyl...

Reply by dmmck

Thank you so much! My case is in the hands of a lawyer now. I worked until I got laid off. The company knew that I had 2 more surgeries...

Reply by Angieb

The pressure and pain comes and then I have to empty and this goes on about 3 times before it stops
Angieb

Reply by Scott F

Are you having the pressure and pain all the time, or just when there’s something in the pouch to empty?
Scott F

Reply by CTB23

I follow up with my surgeon and have been very happy with him. I hope I can stay with him as long as possible.

Reply by Angieb

I’ve had Pouchitis before and took Cipro . I refilled it just in case but the anal pressure and pain didn’t think could be Pouchitis.
Angieb

Reply by Angieb

Hi Scott Cipro 500 mg I actually have a new rx I have not taken.
Angieb

Reply by Angieb

Trust me you will be fine. I was also very nervous and scared but once it was done I was glad. My insurance paid for a nurse for my...
Angieb

Reply by Andrina

Thank you at least you have a year in. I'm anxious about my new j-pouch and packing the wound. I actually cried today. It's only 8 more...

Reply by Scott F

This sounds like pouchitis. In my case most antibiotics failed completely - only Cipro worked. Which antibiotics have you tried?
Scott F

Reply by Angieb

I’m also new with my pouch only a yr in. When you feel up to it let me know how you are doing
Angieb

Reply by Angieb

Hi AIMC no it’s pain and pressure on the anus followed be cramping in the lower abdomen.
Angieb

Reply by Andrina

It's good that you can do that but my company doesn't give me the insurance I need to keep my surgeon. I'm sad.

Reply by Raj

I trust only my surgeon's advice . I have taken his personal number and in case I need to ask him anything he's available of whatsapp.

Reply by Raj

I am not anaemic but still take one iron tablet a day. As my surgeon says pouchers can have low iron levels and its something that will...

Reply by TE Marie

I was approved with my initial application but they had me see one of their psychologist's and a MD. I had documented my last day at...
TE Marie

Reply by Scott F

Although antibiotics can cause bellyaches, your partial obstruction is a more likely cause of your pain. Yes, you probably started solid...
Scott F

Reply by Scott F

Hi, Kate! I use VSL in high doses, to help with pouchitis. I suspect its effectiveness may be mostly because of the very high number of...
Scott F

Reply by Katydid

Apologies for the long post - its my first... Almost embarrassed to say that I had my reconnect surgery was in early 2013 and although...

Reply by Janiep

Thank you Scott!!! You’re always so very helpful!!! I appreciate it. Chronic Pouchitis is why I need the Probiotics. Janie
Janiep

Reply by Scott F

Janie, I also take a lot: 4 packets per day of VSL #3 DS. Thank goodness my insurance covers it! If you are paying the full retail price...
Scott F

Reply by Janiep

Scott F .... I just read all about Visbiome and the lawsuit. I am going to call my GI doc and ask him to write a script for Visbiome for...
Janiep

Reply by Janiep

Thanks Scott. The thing is ... I cannot take the pill from. Actually if you have a j-pouch it is unlikely that you are retaining all the...
Janiep

Reply by Scott F

VSL #3 DS (sometimes called VSL #3 900) comes only in packets with 900 billion CFUs (essentially live bacterial cells) per packet. It...
Scott F

Reply by Janiep

Can someone on this forum PLEASE explained the difference between VSL#3 DS (Double Strength), VSL#3 and Visbiome??? I have been taking...
Janiep

Reply by skn69

Lot's of interesting information here... I use mini bottles of natural oil with a spray top (like a mini suntan spray bottle) and spray...
skn69

Reply by TE Marie

With temp ones they twist the intestine in a loop that's brought above the skin. It is possible for some waste to pass thru it with some...
TE Marie

Reply by Andrina

No. They answered about loop vs end. Not temp end vs perm end I have the loop now and I had to switch to a convex system with barrier...

Reply by shk2j

Hi Lina: My heart is with you because I am also at a similar crossroads. I'm not a mom (yet, fingers crossed) but I would encourage you...

Reply by Andrina

I can't imagine how traumatizing this must have been for you. I'm currently with the loop and I'll be reconnected in 10 days. The only...

Reply by skn69

I had mine out about 5 yrs ago...no problem at all... as for losing weight? No such luck! I haven't changed my diet much. And certainly...
skn69

Reply by Aimc

Sunflower, I had to do clear liquid diet 24 hrs before mine. Then nothing by mouth after midnight the night before the test. The X-ray...
Aimc

Reply by littlered1

I order in bulk so always get free shipping. And there is usually a discount code available for 10% off. $1.30 each is better than 1.50...

Reply by jan15

any way to get free shipping on vitality? otherwise the price is relatively high. still cheaper on amazon. just got box of 12 for 18$...

Reply by Cajundoc70460

I figured as much and googled dozens of time but the images always showed the exterior surface of the staples pouch. I’ll google the...
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