Activity

Reply by brunofrombelgium

I travel a lot with me jpouch , to asia , india china.. . Never had any issues, but by careful with food and water . Bring meds and use...
brunofrombelgium

Reply by brunofrombelgium

No problems with our great belgian beers, no more than 3 pcs and combined with crisps is my pouch is happy 😃
brunofrombelgium

Reply by Pilot Debby

I have heard about St Marks here in the USA...now I see two people on this site who have referred to it now so that is good. I have yet...
Pilot Debby

Reply by Doug K

Re: Death?
Hi Eric, You sound like a warrior- and a guy that won’t give up. I can’t imagine going through that. I would go to see a psychiatrist...

Reply by Pals

Re: Death?
I have a j pouch and had UC. I’m sorry I can’t speak on your condition. I don’t know enough. What I do know is the anxiety and...

Reply by brunofrombelgium

Re: Death?
Dear Eric, After 20 years off cu i end up after 3 shurgerys with a jpouch en it was tough , but when it wend really bad i always held in...
brunofrombelgium

Reply by Native

Suebear im not real sure ha. It doesnt feel like a classic stomach upset. Not affected that I can tell by food or anything... its weird...
Native

Reply by Raj

Have you done your bloodwork recently ?Maybe its the deficiency of iron or dehyration causing these symptoms. I was told by my surgeon...

Reply by Raj

I can do vodka, whiskey , rum, cold beer easily. I dont drink too much beer at most 1 bottle of any strong beer. And I always eat chips...

Reply by suebear

I have traveled all over the world, a lot of 2nd and 3rd world countries, and have never had an issue with finding a bathroom. Africa is...
suebear

Reply by Dyna

Well sounds like I’m gonna try good ol vodka and cranberry. Guess I’ll see what happens. Thanks people

Reply by Dog

Beer gives me horrible gas and cramps with my pouch. Vodka, gin, crown royal, wine. . .no problems.

Reply by Dog

47 and I lift roughly 5 days a week. Abs, squats, etc, no problem. I have to be strict about form. My abs don't "flex" the same way at...

Reply by asdfqwer

I found the more heavily filtered beers to be best, like Coors light was my choice, heineken was good too, almost seemed like gluten...

Reply by Janiep

I lost my thirst for alcohol so I don’t drink much if any. But I found Vodka the only drink I can tolerate without having a bad night. I...
Janiep

Reply by Native

Thanks for the reply Raj! Nice to talk to you again. Nah honestly I never have what I would consider “gas pains” I do think I need to...
Native

Reply by Raj

I am 7 months post takedown same as you. Do you have any gas built up in your stomach ? I can be in form of pockets ? I only get aches...

Reply by Raj

I've been lifting 1 month post takedown. My surgeon suggested weightlifting after 10 days post surgery but I started only a month after...

Reply by Scott F

A variety of clarity-of-thinking issues have been reported with Cipro. Everyone’s threshold (for what side effects are acceptable) is a...
Scott F

Reply by asdfqwer

DOG, I believe I am experiencing brain fog from cipro, and there were a few recent instances where I had to think twice about something...

Reply by asdfqwer

I was doing heavy squats within months of surgery, but that is not smart.... no injuries occurred but I may have been lucky. From my...

Reply by Scott F

Jaypea, Epocrates doesn’t list ototoxicity as an adverse effect of Flagyl. Can you point me to a good reference that describes this ...
Scott F

Reply by Scott F

Some doctors do advise limits to lifting after J-pouch surgery, but most encourage unrestricted lifting (after complete healing from ...
Scott F

Reply by Dog

When I was given cipro, my reaction was amnesia...i couldn't remember my name or where i was. Scary, but no tinnitus. When they stopped...

Reply by Winterberry

After takedown I ate food with soluble fiber, no insoluble fiber foods. No raw vegetables, no fruit peel, no nuts or seeds, not even...
Winterberry

Reply by Scott F

I’ve been on soluble fiber (psyllium) twice daily since my surgery 17 years ago. You probably should go easy on insoluble fiber in the...
Scott F

Reply by Raj

Many folks are given fiber supplements 1-2 months post takedown to help the stool bulk up. I was given immediately after takedown. 4tsp...

Reply by CTB23

What type of diet were you given? I was on a low residue diet for about a month. Check with your surgeon’s office if you weren’t given...

Reply by CH4

The doctors at "Colon and Rectal Clinic of Colorado" are incredible. Look up their website and see if they are what you need.

Reply by Scott F

Africa is a big, complicated place. Planning a trip to a city is different from trekking the savanna. Some trips would have plenty of...
Scott F

Reply by nocolon-2000

I miss those chat room days! It was so great to talk to people and be silly. I will always be grateful for the friends I made and the...
nocolon-2000

Reply by CTBarrister

I do recall reading about somebody going to the bathroom in the African wild and getting attacked and killed by a lion. I don’t know if...
CTBarrister

Reply by scallop

Reply to Scott -- Concerned about g.i. diseases, dehydration, lack of access to toilets, water issues. Thanks.

Reply by Dog

Jim here in Denver. Anyone have a good GI doctor? I've been to Rocky Mountain Gastro and not happy with them.

Reply by BillV

I traveled to Eastern Europe 4 times with a J pouch and had no major problems. Unless you have significant ongoing issues, you should be...
BillV

Reply by mamaswans

Thank you for the reply. I am taking 2 packets currently and seeing some improvement. I’m especially glad to hear that some insurances...
mamaswans

Reply by Scott F

Lots of folks here use it. I’ve had success with a very high dose (4 packets per day). Some folks are able to get insurance coverage for...
Scott F

Reply by Craig.

Eric ; It is good to know and especially hearing from you about how much the staff at Mount Sinai Health mean to you. In the States it...
Craig.

Reply by marz

I am in Naples. My GI knows about pouches and they even have a research dept that tries new drugs for Chrons (which hopefully we don’t...

Reply by Jaypea

Yes, flagyl is well known to cause ototoxicity...deafness, tinnitus. In adults deafness is usually not common, however in the pediatric...

Reply by AllyKat

I’m on Entyvio for 3 years and I still have my 19 year old pouch, pouchitis since day 1! No you won’t lose it. Lots of things out their now.
AllyKat

Reply by Scott F

Neither Flagyl nor Cipro include tinnitus (ringing in ears) as a reported side effect, according to my reading. Tinnitus is pretty...
Scott F

Reply by asdfqwer

Interrsting, what accounts for higher risk with younger people? More metabolic activity?, more cardiovascular activity, more muscle mass?

Reply by Raj

I dont know if it'll work or not but when I get constipated by an overdose of imodium that is barely a tablet a day, I feel pain in my...

Reply by Raj

Yeah UC remissions makes you overthink easily over any type of food or situation you are getting in. I also got from being a highly...

Reply by Scott F

Dawn, I can’t tell how much water you drink, but it’s possible that you need more. You might get some benefit from soluble fiber (with...
Scott F

Reply by Bobish

Hi, just wanted to give you some sort of reply since nonen rise has picked this up. The medical system here in the UK is different to...
Bobish

Reply by PATRIZIA

Hello, i have also recently moved to the UK and was given by my specialist in Belgium the name of Prof. Alisa Hart who works in St Mark...

Reply by RubyDawn44

Thank you for your reply Scott, No opiates, I drink water or koolaid but I do indulge in chocolate milk. I started out with 2 stool...
RubyDawn44

Reply by Scott F

That sounds pretty uncomfortable, Dawn, and I’m sorry you’ve been going through this for so long. Other than stool softeners, which it...
Scott F

Reply by Scott F

I think this is probably nonsense. If someone’s pouch were chronically inflamed then there might possibly be some consequences elsewhere...
Scott F

Reply by RubyDawn44

One more thing, when I had my kids, my obgyn told me I was covered in scar tissue and one day it would have to be removed because it...
RubyDawn44
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