Activity

Reply by Winterberry

Hello, Amin. Your case is exactly what mine was. In my case, my surgeon scheduled a pouchoscopy (also known as an endoscopy) every six...
Winterberry

Reply by Winterberry

Try looking in a children's store, big box toy store, or ikea store for those small plastic step stools, the kind little kids use to...
Winterberry

Reply by Madison

I hope this suggestion helps as it helped me a lot . I am seeing a ' Bowel specialist' at Marks hospital, in London. This recommendation...

Reply by BillV

I had a J pouch for 30 years and also had lots of adhesions. Fortunately, none of them caused a blockage, but recurrent high grade...
BillV

Reply by duck11

Thanks all-laying here in hospital for the bizilliinth time with the Ng tube, I know deep down it’s the right call. I’ve had my pouch...
duck11

Reply by David W

Duck, so sorry to hear you're still having these issues. That's no way to live your life. My experience is EXACTLY the same as...
David W

Reply by Scott F

Duck, it’s clear to me what problem adhesion surgery would be intended to fix. I have no idea from your post what problem pouch removal...
Scott F

Reply by Mysticobra

I don't know how long you've had your pouch. I had mine for only two years and it never worked right. I was in constant pain. And it was...
Mysticobra

Reply by Scott F

The good news is that the pouch is made of small intestine, and cancer of the small intestine is very rare. Cancer of the rectal cuff...
Scott F

Reply by PouchLogic

I sometimes notice I have tail bone pain before I know that pouchitis is coming back. I also noticed it when I get dehydrated. Otherwise...

Reply by Scott F

I think what has served me best really applies whether you have a J-pouch or not: respect your body and the signals it gives you. It’s...
Scott F

Reply by Alexwin

Hey thanks so much for the respons . And yes, I do mean Brazilian jiu jitsu. In your experience, what would you say the most important...

Reply by Scott F

Florastor wouldn’t be my first choice, since it’s not a bacterial probiotic. It’s a yeast strain that seems to offer some protection...
Scott F

Reply by Scott F

After my surgery I finally felt well enough to take up a martial art, and I worked up to black belt and now I teach Japanese Ju-Jitsu.
Scott F

Reply by Scott F

I had it for a year or two, and it was pretty significant. It hurt most when I got off a stationary bike. I was lucky that it finally...
Scott F

Reply by Bubba1028

Vsl, for me, isn’t covered by insurance and is too pricy. My doc suggested floristor about 15 years back and I stuck with that for a...

Reply by PouchLogic

Hi Taylor, I have not tried kombucha. I and most people on here take VSL3 or Visbiome as a probiotic. Many other people take other...

Reply by PouchLogic

How long are you actually sitting having a bowel movement? I know sometimes I can be done in a couple minutes other times I sit for 20...

Reply by SteveD

I suffer from this from time to time as well.. My wife just got me a squatty potty for Christmas so I've only used it for 2 weeks but it...
SteveD

Reply by n/a

I was on it about 8-9 months, and did not get cdiff. (I had cdiff once before when I still had my colon).
n/a

Reply by Scott F

The signals our body sends us about our lifting limits are mostly about muscle exhaustion, and don’t tend to provide good information...
Scott F

Reply by girlunky

Yes, well I did give up on the idea of competing in powerlifting again. I always leave two reps on the floor - meaning I don't push to...

Reply by duck11

I’m following this discussion closely as I am in the exact same boat-I’ve had 23 partial obstructions in the last 18 months and I WISH...
duck11

Reply by Scott F

You’re likely to continue to get to know your new plumbing better as time passes, as long as you’re paying attention. I’ll make the...
Scott F

Reply by Scott F

Lifting is *not* risk-free for J-pouchers , but folks may judge it worth the risk if lifting is important to them. The usual suggestion...
Scott F

Reply by girlunky

I went back to my powerlifting and core training pretty quickly, but I started very very light. I was lifting light weights between each...

Reply by strange

Think it also depends on whether you had open or laparoscopic surgery. I had open surgery and even prior to my J pouch creation, I...
strange

Reply by n/a

Ya, I wouldn't call it "rude" - I'm pretty sure I've "flashed" now and again, but I don't believe people watch my front side that...
n/a

Reply by PouchLogic

After my pouch was completely done, I was probably lifting weights 2 and a half months later. I was definitely taking it easy and it was...

Reply by Bret

Hey, buddy. After taking advice from this forum and others, I elected to have an ileorectal anastamosis operation rather than the...

Reply by Jan Dollar

Not sure what is going on here, but it appears an old thread has been recently revived and there have been some misunderstandings...
Jan Dollar

Reply by Bobish

I contributed 2 pieces of advice both of which l feel are valid and were meant sincerely. If they are not valid i have already...
Bobish

Reply by Elif

http://theawkwardyeti.com/comi...d-episode-4-breakup/
Elif

Reply by Cdub

Right Bobish, that’s enough. Firstly, the subject of this thread should make it crystal clear that this isn’t for you. This has to be a...
Cdub

Reply by Bobish

Cdub, geez can't even try to help nowadays! Why can't straight guys give advice to gay people? sorry I certainly didn't mean to cause...
Bobish

Reply by skn69

I am on longterm maintenance doses of Robaxin for severe spinal/hip pain...it helps a lot. They had used tramadol on me but I hate the...
skn69

Reply by skn69

Not sure of your age but could it be endometriosis? Ovarian cysts? Adhesions (they really do not show up on most exams), does it hurt...
skn69

Reply by Scott F

Hi, Shylock. When you write that your “pouch always bulged out a little” on the “RHS” (right hand side?) do you mean that your abdomen...
Scott F

Reply by Kushami

I'm so glad to hear the Cleveland Clinic diagnosed your problem. I have to admit that I fantasise about going there to get my pouch...

Reply by girlunky

At 10 months by best nights are one wakeup, but two is more usual. On bad nights when my pouch is irritated or I ate too late I might be...

Reply by Makaveli

Thank you all for taking the time to read through my post and replying. Much appreciated. For the first time since surgery, I only had...

Reply by Cdub

Hi Bobish. If you’ve read the full thread above, you’ll have seen advice from several people who do have experience of this (and...
Cdub

Reply by Bobish

For me butt burn is usually caused by physical action ie wiping to much or too hard, or cleaning to much can dry the skin out. Sometimes...
Bobish

Reply by Bobish

Fairly decent pouch for 3 years and I still get up once or twice a night no matter what.. can usually get back to sleep quickly so not...
Bobish

Reply by GherlFriday

I've been living like this for about 20 yrs. I'd been telling drs that my j-pouch had moved and that it felt like it had fallen on to my...

Reply by GherlFriday

I don't have it scheduled but the surgeon just called and said they wanted to hospitalize me to get me more comfortable before the...

Reply by GherlFriday

Yes. I just spoke with the surgeon's office. They want me to come in asap so that they can help me to feel as good as I can before...
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