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Reply by Doug K

I am sorry to hear the doctor respond that way. I see a top GI doctor in NYC and he treats me with Tincture of Opium with great success.

Reply by Scott F

It really would be better to treat the source of the problem than the symptoms, if that turns out to be possible. Good luck!
Scott F

Reply by kta

I reviewed the message sent by my docs office and it wasn't AS blunt as I remembered. I think I just panicked. Still am nervous. I did...

Reply by kta

Mike - I used Canasa for a long time until I developed an allergy to it. The swelling went clear into my mouth. Yes, they helped...

Reply by Winterberry

Indy Dave, I hope your doctor can help you. It must be hard to go to work everyday knowing that you're exposed to thousands of people in...
Winterberry

Reply by canlafre

I have received a letter from my GI Doc. It was not a problem at all. She said that it would be best to work from home, if that was...

Reply by jpoucher21

Hello everyone, I know this is a very old thread, but I am really hoping to connect with fellow j-pouchers who have experience cycling.

Reply by jpoucher21

Hello everyone, I know this is a very old thread, but I am really hoping to connect with fellow j-pouchers who have experience cycling.

Reply by skn69

Scott, It is so much worse than I can even describe...800 deaths in Spain today and 380 in France...there are no words to describe the...
skn69

Reply by grandmaof1

Try grape juice for blockage. It has to be 100% grape juice. I keep it on hand now always. It’s something in the sugar that helps you go...

Reply by Scott F

I’m very glad you are well, Sharon, and being busy sounds quite helpful at a time like this. Thank you for sharing first-hand what’s...
Scott F

Reply by skn69

It is simple for me (41yrs experience)...I rinse it with my 60cc syringe or with a squirt bottle of water that I take into the stall...
skn69

Reply by skn69

Hi, Have you tried changing positions? If you normally sit, try standing up (less pressure on the bottom of your pouch...it will hang...
skn69

Reply by skn69

I am less susceptible than before having my colon out...but I do not play with fire either...a true flu can knock us on our bottoms...so...
skn69

Reply by dpol

So sorry for your troubles! The last time I had trouble intubating, I just left the catheter in for a few days and it helped. If you...

Reply by JordySimo

@Winterberry , I’ll openly admit I’m guilty for not drinking anywhere near enough water, I tell myself every day to drink loads but I...
JordySimo

Reply by iHateColitis

I was discussing this with my wife a week or so ago. in like 3 years, I didn't even get a cold once. i've had my pouch now for 15 years.

Reply by CTB23

Asa, Hope you feel better soon. Take care of yourself! We’ll be rooting for you.

Reply by girlunky

Hang in there Asa, I know that can be a side effect from the anesthesia. Hopefully it won't last much longer.

Reply by Asa Lay

Developed a problem with chronic dry mouth from surgery onward. The last 3 days have been hell. Tonight will be the worst. Their...
Asa Lay

Reply by kta

They had never mentioned any discomfort with the med. I did once ask her if the whole opioid crisis and the new ruleswould interfere...

Reply by Scott F

I’ve always gotten better results from Lomotil than Imodium - perhaps it would be adequate for you, if you can find the right dose.
Scott F

Reply by LIGuy11

I was just thinking about this too. I'm 29 and have had my j-pouch since age 16. I do tend to get sick easily. I work at a cancer...

Reply by Winterberry

Since 2016 takedown, I've only had two mild colds. I used to get colds twice a year! I always get an annual flu shot and I haven't had...
Winterberry

Reply by JordySimo

I am very rarely ill also. Only ever had the odd common cold here and there but nothing else. Before my surgeries I was picking up...
JordySimo

Reply by CTB23

Yes, haven’t had flu at all in the last 5 years and one mild cold and I work with kids and their families,

Reply by Twanggg

Hello all. has anyone noticed since Colectomy that they don’t get colds and flu as much or very mild cases. In 12 years I think I got it...

Reply by Andrina

Since I wrote this, I've been able to pass gas three times. I'm afraid to soil myself so last night I put on a diaper. This morning I...

Reply by Scott F

Yes, you are overthinking this, IMO. A person with a J-pouch will never have anything close to what is generally meant by a “healthy...
Scott F

Reply by PouchLogic

It can be hard to get rid of pouchitis so I wouldn't suggest any shorter than two weeks for antibiotics either. I take probiotics to...

Reply by Bubba1028

I’m 2.5 years post takedown and I guess my numbers are higher. I go about 10 -12 times during the day and on a good night I only get up...

Reply by kta

Yes, Scott. That is correct. I guess I just don’t know if it is normal for j- pouchers to have explosive gas and crazy frequency. I have...

Reply by kk

I went for a long time getting really sick at my stomach and at times throwing up. Then I got really sick, hospitalized then had...

Reply by Scott F

Yes, take the full two-week course, to maximize the chances that you’ll be done with this for a good long while. No one in their right...
Scott F

Reply by Scott F

Self-dilation is safest when it’s used to maintain an opening created “professionally.” Some folks here do it all the time, and can give...
Scott F

Reply by JHendrix

Cipro was the only one that I took and it cleared it on its own. But I don't have alot of experience with pouchitis.

Reply by Charlie1026

Thank you both for your input. Do you recommend taking the antibiotics for the full two week course? I’ve never followed that rule only...

Reply by Aimc

To be safe. Call your GIoe surgeon and ask what advice they would give you. Aimee
Aimc

Reply by PARRR

Thanks Scott. After I posted, I thought back and remembered that I was having very similar issues back in January of this year. I made...

Reply by Scott F

It sounds like pouchitis to me. I’d normally suggest taking one antibiotic rather than two, unless your doctor felt strongly about your...
Scott F

Reply by Scott F

I’d guess you might have a stricture rather than constipation. Is there a particular reason you think it’s constipation? Go easy on...
Scott F

Reply by Scott F

The advice about sleeping through the night has been written here a bunch of times. Find the search function (on my browser it looks...
Scott F

Reply by JHendrix

I go much more frequently than the 4-6 and it isn't an issue for me. Everytime I sit down to pee (woman), I usually empty the pouch too.

Reply by JHendrix

I developed my only case of pouchitis right after surgery. I may be way off base with this but I attribute it to the liquid diet which...

Reply by Charlie1026

That’s what I have for antibiotics too. I’m worried at how quickly this happened after surgery! Do you get pouchitis often?

Reply by Winterberry

I used to stop eating hours before bed, but would wake up hungry and still need to use the bathroom. So I tried to eat a small piece of...
Winterberry

Reply by girlunky

You're going to feel much better once you get rid of the inflamed colon! Try and walk asap after surgery (even the same day if you can).

Reply by oml703

Asa Lay, Thinking of you and sending healing vibes . Hope you are doing well.The first couple of weeks are difficult, strange and at...

Reply by PouchLogic

I agree with Scott, I usually make it through the night but not always. My best suggestion is don't eat or drink later than a good...

Reply by PouchLogic

It's possible you have pouchitis. Very similar to my symptoms. What antibiotics do you have? I usually take Cipro and flygal. You can...

Reply by SJAN810

TE Marie, Thanks for responding! Sorry to hear you have dealt with similar issues. I'm wondering what you mean by a permanent ileostomy?

Reply by TE Marie

Did you discuss getting a perm ileo instead of a temp one? I had a permanent ileostomy while being diverted from my j-pouch. My surgeon...
TE Marie

Reply by Scott F

The healthiest, best-functioning pouches usually produce 4-6 BMs per day, and generally let people sleep through the night. I don’t know...
Scott F

Reply by Aimc

Solomon, hi sorry for your difficulties. It does sound like you may need dilation. The incontinence is probably from being full of poop.
Aimc

Reply by JordySimo

Thanks for that, Scott. Interesting read. Another article some may want to read is this by Chron’s & Colitis:...
JordySimo

Reply by Kmiller

I got a ninja foodie and love it. Pressure cooker, slow cooker, steams, bakes, air fries all on one.

Reply by lclassen

Air fryer is fantastic! I have one that looks more like a toaster oven (rather than a round basket type) and it's great for grilling...
lclassen

Reply by lclassen

Yes, thank you everyone. I've often wondered if I'm immune compromised still, just because of not having a colon (but have a J-pouch).
lclassen

Reply by CTB23

Yeah I’ll start to use my bidet more now, my husband and daughter aren’t fond of it!

Reply by BrendansMom

My father-in-law has digestive issues and did use a ton of toilet paper. We got him a hand-held sprayer and he loves it! Says he's not...
BrendansMom

Reply by Scott F

Kta, just to make sure I understand correctly: when you’re on the antibiotics you feel well and do well, but you want to stop them. When...
Scott F

Reply by vicky g

Hi Andrina, gastrographine is sold over-the- counter in my country (Greece) in local pharmacies, however I cannot tell if this is the...
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