Activity

Reply by Still Standing

Your situation sounds so similar to mine with UC after childbirth, a crohn's diagnosis and chronic pouchitis. I am currently on entyvio...

Reply by PouchLogic

The other thing you didn't mention is if you have tried probiotics? I was having problems with reoccurring pouchitis, the probiotics...

Reply by Scott F

I basically agree with CT. You don’t say which antibiotics you’ve tried, so it may well be worth running through the best candidates,...
Scott F

Reply by Janiep

I’m trying to get my Insurance Company to pay for it. Hopefully they will but Xifaxin is an antibiotic that goes straight to the GI...
Janiep

Reply by CTBarrister

I followed a similar path as you and have now been on Remicade for 3 years. It improved my condition considerably. If you have tried the...
CTBarrister

Reply by Spooky

Yes, the appendix is connected to the colon, so if the colon goes, so does the appendix - as an analogy, you can't amputate a hand but...
Spooky

Reply by Accept It

I am from Michigan. Had my j pouch surgery back in 1985 at Beaumont hospital in Royal Oak.

Reply by strange

Yeah and that area will be made sterile during suture and the nil by mouth from the previous evening will reduce output.
strange

Reply by Bubba1028

Yep. I didn’t even think of this until my doc told me after. When I have it more thought, i was like, oh yea, that makes sense. Lol. One...

Reply by colitisresearch

I called and the nurse is pretty sure it’s no bowel prep but no food after midnight. She said she’d double check with the surgeon and...

Reply by Scott F

The loop ostomy has to be closed up. It’s best not to suture through poop. The surgeon’s office is the only good source for these ...
Scott F

Reply by CTB23

It might have been just a clear liquid diet the night before. With three stages, it's difficult to remember how things went.

Reply by CTB23

I could be wrong. I don't remember, but either way, it's good to get pre-op/prep instructions.

Reply by strange

So my reply is wrong ? How is the prep taken ? Oral prep taken will come out into the colostomy bag via the temp loop ileostomy. The...
strange

Reply by CTB23

Yes, best place to call is surgeon's office. My surgeon always told me exactly what preps I needed to do. If I remember right it wasn't...

Reply by Scott F

Just call your surgeon’s office to get the pre-op instructions, whatever they are.
Scott F

Reply by strange

Not what I remember. At present, you have a loop illestomy and output of your small intestine is diverted into the bag; so should be...
strange

Reply by Paul H

I've heard John Radcliffe near Oxford is good, echo St.Marks. You say you live in Europe, I had excellent surgery at Bellvitge in...
Paul H

Reply by strange

No Actual Surgeon but best Colorectal Hospital in the UK and where I had my J Pouch surgery, is: St Marks Hospital, Harrow, London, UK.
strange

Reply by JLH

yup, no more colon with the k pouch. you'll have a barbie doll butt! sore after the surgery, but no more need for it. when is your...

Reply by LadyTay97

I was not given an option. I had colon cancer and every bit of the colon had to be removed so there was no chance that the cancer could...
LadyTay97

Reply by Raj

I take 2 tsp . One after my breakfast and another after dinner. I take it in raw form with water. Sometimes I skip it in breakfast if I...

Reply by Raj

I dont think they give you an option to keep the rectum atleast I wasnt given any. My surgeon told colitis has a very chance of flaring...

Reply by aka KNKLHEAD

My surgeon is extra cautious. Eight years since original surgery, he wants me to see him every year for scope. I am also doing a CT scan...
aka KNKLHEAD

Reply by wolfie

Re: Scope
Yes, I go to Dr. Lavery. He’s been practicing since the 70’s!

Reply by CTBarrister

Re: Scope
That’s the way it usually is, not just with colon cancer but also my thyroid cancer. I was stage 3 when it was detected on a routine...
CTBarrister

Reply by Winterberry

Re: Scope
I have a j pouch due to stage 1 cancer that was located in a tricky spot. I was very lucky. My pouch is scoped twice a year, for now,...
Winterberry

Reply by Teacherlady

I take one generous dose ( a sightly overfull teaspoon full, but not "heaping") before lunch each day. I just stir it, and then add more...
Teacherlady

Reply by Scott F

I use psyllium twice daily, before breakfast and dinner. I mix a full dose (per the label) in 8 oz. of cold water. It mixes much better...
Scott F

Reply by CTBarrister

Re: Scope
One should scope annually if there is any history of dysplasia, chronic pouch inflammation or cuffitis. Otherwise it’s discretionary. I...
CTBarrister

Reply by GraceB

Re: Scope
I also request sedation. They tried it once in office I couldn't do it. How often should the Dr. do a scope? Just curious, J-pouch...

Reply by Bobish

Whether or not the next stage of surgery is easier, depends on what they did in stage one. I had a 2 part surgery, the ostomy and pouch...
Bobish

Reply by Bobish

The jpouch is designed to replace the rectum, then you make do without the colon. The advice and best practice is to remove as much of...
Bobish

Reply by Jan Dollar

Re: Scope
There is no one right answer. If you need sedation, you need sedation.we are alldifferent. Next time you schedule your scope, just let...
Jan Dollar

Reply by ytcrockpot

Re: Scope
I’ve had a scope every year for the past 37yrs. I had sedation 1 time, way back when. It’s a little discomfort,but I prefer none. In and...

Reply by Raj

The fact that you're getting j pouch at 70+ is great in itself. My Surgeon said had I been a 60 yr old he wouldnt have gone for the...

Reply by Winterberry

Re: Scope
I always ask for sedation for scopes. My scopes are done in the hospital where my surgeon created my pouch, never in his office. There...
Winterberry

Reply by Scott F

Re: Scope
Pouch scopes are commonly done without sedation, and are much less expensive when done in the office. Some folks prefer sedation, though.
Scott F

Reply by CTBarrister

Re: Scope
No it’s not. I usually get offered a choice of propofol or conscious sedation. I choose conscious sedation because I dislike the use of...
CTBarrister

Reply by Bubba1028

Sounds like you have a good plan in place. How long did the doc tell you it would take? I’m a year out from my takedown (hookup to...
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