Activity

Reply by CTBarrister

They also kill the bad stuff that causes all the problems. If you think that probiotics are a panacea that will solve IBD on their own,...
CTBarrister

Reply by msh98991

Meant to sat that I took one midway between doses of Flagyl and now that I am off Flagyl (THANK GOD!), I continue to take one a day.

Reply by msh98991

Yes, I am taking probiotic. I was talking one between doses of Flagyl. I like Phillips Colon Health. I am not familiar w/ Visbiome.

Reply by woodstock69

My problem is not around the stoma it is around the perimiter of the outer adhesive, I am allergic to all of them so far.Thanks for the ...

Reply by Raj

VSL3# capsules or the DS sachets are considered to be top notch probiotics specially for patients with IBD or jpouch. I used to take 1...

Reply by Scott F

It would be best to visit the doctor to properly distinguish between hemorrhoids and a fissure. The straining is quite harmful in either...
Scott F

Reply by Jami1989

Great! Are you taking probtioics? I caved and just ordered more Visbiome. Probtioics seem to be so helpful. Antibiotics kill the good...

Reply by msh98991

Thank you all for your replies. I finished my Flagyl dosage up yesterday. I am soooo happy to be done with it. I'm keeping my fingers...

Reply by Jami1989

Flagyl does nothing for me compared to Cipro which I’m unfortunately building up a tolereance too. Every antibiotic I’ve been in has...

Reply by Jami1989

Re: Hernia
You’re definitely not alone. My staples got infected and caused me to have a huge wound and eventually a huge hernia that I thought was...

Reply by pinklady

I have experienced the same issue.ita not over the counter it’s a compound that the pharmacy has to make.You use before and after every...

Reply by Pouchomarx

Re: Hernia
just FYI... hernias do not just go away
Pouchomarx

Reply by Art

Woody's Child... one of several methods include something you ask your doctor about...a Swedish company makes a seaweed derived strips...

Reply by Mema 1

Thanks Pink Lady, and that's what I'm doing, straining. I think that it's possible that I have a fissure and/or hemorrhoids. I'm...
Mema 1

Reply by n/a

Ya, my surgeon said there was a lot of "jpouch junk" in there as well. Even though I hadn't eaten for 12 hrs prior, and thought I had...
n/a

Reply by pinklady

Could you possibly have a fissure? Fissures can cause bleeding and throbbing pain when your having difficulties empty your pouch or feel...

Reply by woodstock69

My end ileo is new and I empty every 2 hours, my j pouch was worse, 20-30 trips a day to the bathroom and this is easy, takes a few...

Reply by woodstock69

No prep, I just had mine removed but I will say the dr said there was alot of junk tangled in the scar tissue, maybe there should have...

Reply by Mema 1

Thanks, Scott, I really appreciate your come back. What do I do about them??? I get really frightened when I see all that blood on the...
Mema 1

Reply by Mema 1

I've been having bleeding as well, but just on the toilet paper. It showed up with a tiny amount and last night there was quite a bit.
Mema 1

Reply by CTB23

The new GI doctor at Yale is Badr Al Bawardy. Not sure if he has experience with J-pouch patients. Might be worth checking him out.

Reply by Ikh

Not always the bleeding is because of cuffitis, because some surgeons decide to remove every inch of rectal cuff and the last 1 cm to...

Reply by CTBarrister

They sprayed my throat with the numbing agent but unlike Jaypea, it didn’t stop the gag reflex. I finally pulled the NG tube out on my...
CTBarrister

Reply by Ikh

The maximum amount of Flagyl taken for pouchitis, according to a paper, is, 20 mg/Kg/day; this means that if your weight is 75kg or...

Reply by Mike weather head

B12 is absorbed through as far a I know ,under the tounge don't work for me,I just give myself a shot once a month I'd like to do it two...

Reply by rebel

You can get B12 tablets that you place under the tounge so they get absorbed that way. They are labelled sublingual. But you need to...

Reply by rebel

As Scott says; B12 is really important as it aids many of the processes in the human body. It's surprising how easy it is for Health...

Reply by Scott F

Cuffitis is generally treated with different medications than pouchitis. Cuffitis is like UC in the small amount of remaining rectal...
Scott F

Reply by Angieb

Yes Scott yes I have both. Is cuffitis worse? Have a follow up appointment with surgeon on 2/21.
Angieb

Reply by woodstock69

I had my 30 year old j pouch removed December 6, surgery was 6 hrs of digging through scar tissued, 25 staples and visceral sutures in...

Reply by pinklady

I have dealt with bleeding myself.i had my j pouch created in 2009 and started bleeding that caused my hemoglobin to drop so much I hve...

Reply by pinklady

I have been dealing with severe GI hemorrhages since January of last year.I have an area that connects my small bowel with j pouch that...

Reply by Solomin

It is possible that you have pouchitis. Your doctor can test for it and prescribe antibiotic(s) like ciprofloxacin and possibly Flagyl.

Reply by Solomin

Have you been tested for pouchitis? Maybe you have this and need antibiotics. Another thing to try is a prescription cream (at least a...

Reply by Solomin

Re: GAS
Have you been checked for pouchitis? Perhaps you would benefit from antibiotics ciprofloxacin possibly combined with flagyl. Another...

Reply by Scott F

Blood is more often a sign of cuffitis rather than pouchitis. Perhaps it’s time for your doctor to take a look. Do you have a...
Scott F

Reply by tf

Re: Hernia
I hope for u it does go away. For me I have had the hernia since 2014 and it's not going away; it's growing. I know this surgery should...
tf

Reply by Angieb

Hi Sott I’ve had Pouchitis early on and was treated with Cipro. Maybe I’m one of those ones that needs to stay on antibiotics. I...
Angieb

Reply by Gary Ontario

I had prostate surgery in 2014. Not cancer. It didnt help, and likely made things worse. Thanks for the advice re B12. I'm 68 and live...
Gary Ontario

Reply by lablover

my DH has SIBO from time to time. His GI is sending him to Penn State where there is a doctor who specializes in SIBO.
lablover

Reply by Scott F

Gary, make sure they re-check the B12 after some time on supplements. If your supplements are oral it’s possible you won’t absorb them...
Scott F

Reply by Gary Ontario

I was low on B12 but am now on supplements. Seen several specialists with no diagnosis yet. A neurologist is next. It's rather...
Gary Ontario

Reply by Scott F

I guess you could have B12 deficiency, which sometimes causes numbness. I’m assuming you’re not anemic, since that’s probably been...
Scott F

Reply by Gary Ontario

Hi Scott. I had short-term flagyl many years ago and sporadic short-term cipro in more recent years, the last in late 2017. I try to...
Gary Ontario

Reply by Scott F

If your chronic pouchitis is being treated it’s more likely that your symptoms are medication side effects than some sort of invisible...
Scott F

Reply by Scott F

Angie, leakage at one year isn’t really normal. Has pouchitis been considered?
Scott F

Reply by Raj

To be honest after doing pelvic exercises regularly I've never had any sort of leakage. I had close calls but no leakage. I try to do...

Reply by Solomin

Maybe you have pouchitis. Perhaps you can see your GI and get a prescription of cyproflaxin possibly combined with flagyl. This drug...
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