Activity

Reply by CTB23

Now they keep it behind the register at the pharmacy at my Costco, so you have to ask for it and pay separately.

Reply by TE Marie

I just bought 200 on ebay for just under $30, free shipping. I agree about it being crucial. It just makes me mad that a year or so back...
TE Marie

Reply by YungriiMobliatri

My Costco keeps running out. I'm 50 / 50 this year when I go in. It is still very cheap, which is great, it is fairly crucial for my...
YungriiMobliatri

Reply by PSJ

Crohns runs in my family but they assured me.before surgery that was not it. The blood is not too dark but I need to get checked. I...
PSJ

Reply by CeeeeCeeee

Some of my friends have raised toilets because it is difficult for them to stand up after using a toilet which is closer to the floor. I...

Reply by BillV

I had a J pouch for 30 years that had to be removed due to recurrent high grade dysplasia and a malignant polyp in the anal canal. The...
BillV

Reply by Jfill21

I will second what CTB23 stated. I also had the 3-step after an emergent subtotal colectomy with end ileostomy. I remained undecided...

Reply by CTB23

I had my surgeries at 61, 3 step process. My recoveries from surgeries were good and I have had just minimal issues that most j-pouchers...

Reply by Bubba1028

Cool. So there’s hope that I won’t have to use it forever? I have found I can god with regular toilet paper and stuff once or twice a...

Reply by CTB23

I was listening to a doctor on NPR about squatting when having a bm, not necessarily for pouches, but just in general. Reminded me of...

Reply by Jan Dollar

If the above does not help, some other things to consider: Sounds to me like a mechanical obstruction, like some sort of positional...
Jan Dollar

Reply by CeeeeCeeee

Early on, after my takedown, I seemed to have a "bashful J-pouch". The toilet wasn't its friend, at all! I found I had to train myself...

Reply by CeeeeCeeee

I rarely, if ever, need to use a barrier cream. (15 years post takedown) When I do it is just for a day. Keeping the anal area super...

Reply by CeeeeCeeee

I'm curious. What do you consider high frequency to be? What symptoms do you have when you are experiencing high frequency?

Reply by Kim S

When I initially had k-pouch surgery 35 years ago, I was so sick that I barely weighed 100 lbs. Nine years later I sailed through a...

Reply by Lou_Lou

Hi Im not sure if this helps but i actually have a diagnosed fistula which occured after a bartholin gland abscess. You would know if...

Reply by skn69

First off, Congratulations Kim (if one can congratulate anyone for a surgery!)...I hope that the problem gets fixed and that your...
skn69

Reply by JLH

Hi Kim—so great to have good news from you re-upcoming surgery and all things looking positive. It also sounds like the surgeon is...

Reply by kta

I admit to being bad about sugar. Other than that, my husband and I are both foodies and eat a homemade, pretty healthy diet. There are...

Reply by TE Marie

Thanks Art. I had a bunch of problems with my j-pouch so had to have it removed. It is good to see someone getting over a nasty problem.
TE Marie

Reply by Kim S

Arrived in Winston-Salem today. Revision surgery with Dr. Jean Ashburn is first thing Monday morning, June 18th.

Reply by Art

When I had my stoma some 8 years ago the skin around the rim began to get red and irritated;; one of the things that might be effective...

Reply by Art

Salis has website where it lists Xifaxan along with about 8 other of the drugs they produce; each one associated with various forms of...

Reply by TE Marie

Congratulations! I tried it for over a year and it didn't help. My insurance covered it but I believe it was something like $900 per month.
TE Marie

Reply by TE Marie

I see the comment about only those being "homeless or living at the poverty level" has been deleted. That's good, thanks.
TE Marie

Reply by CTBarrister

One last comment - be careful with loperamide. It can make pouchitis worse if you are taking it with antibiotics (overthickening of...
CTBarrister

Reply by CTBarrister

Ulcers are inflammation or a manifestation of inflammation so as far as the Doc saying it’s not pouchitis and it’s not Crohn’s - the...
CTBarrister

Reply by pennie07

hi Scott thank you for commenting. reports say it’s not pouchitis. I have cipro on me but am afraid to take it as I’m wondering if my...
pennie07

Reply by pennie07

hi Aaron gosh i really hope you feel better soon. thanks so much for the tip. i did end up going to visit my surgeon earlier. reports...
pennie07

Reply by TE Marie

To reply to the original question - yes I am appalled at the increase in cost. Even the imodium without the simethicone has increased...
TE Marie

Reply by TE Marie

I have a permanent ostomy and empty around 10 times a day - which appears to be normal per another support group I visit. In order to...
TE Marie

Reply by ytcrockpot

That’s unbelievable what you pay, We don’t have much of a choice, not too much meds out there that work like immodium. Good luck,...

Reply by Bobish

In the UK it has become very hard to buy loperomide in bulk, I actually have to get it imported from USA, which really pushes the cost...
Bobish

Reply by AARON

Could be Crohns - ulcer in the small intestine. Thought I was having pouchitis for months but it turned out it was Crohns. Is your blood...

Reply by Alock

If someone would of told .e back then what i know now. Try using 100% psyllium husk. It is simply fiber. It thickens the stool and...

Reply by Isbella

I am taking Lomotil instead of Immodium it works for me ,immodium is low acting.. Are you okay with the surgery you that had ? I hag the...
Isbella

Reply by CTBarrister

OK just saying......you can mix and match your own meds, sort of like Walter White on “Breaking Bad” except in this case it’s legal and...
CTBarrister

Reply by Art

By this time the drug company Salis is giving my scrip as for free with no co-pay though it might be both Medicaid and Medicare that...

Reply by CTBarrister

I do not understand why you can’t take loperamide generic for one symptom and other generic for the other symptoms. There is no need to...
CTBarrister

Reply by Scott F

I’m assuming nothing. I expect brand-name drugs to get unreasonable price increases for the next few years - they are trying to...
Scott F

Reply by ytcrockpot

This thread has gotten way off topic. The immodium multi symptom I’m speaking about is very expensive. I’ll call it what the...

Reply by Scott F

I’m glad the Xifaxan is doing the job. You didn’t mention its astonishing price, so I’m guessing that in your circumstances that isn’t a...
Scott F

Reply by Scott F

The most common cause of blood in the bowl is hemorrhoids, which can be painful or painless. That’s not the only possibility, though,...
Scott F

Reply by Scott F

Everyone is different. From what I’ve read here I’d guess that most people eventually stop completely - I certainly did, perhaps a year...
Scott F

Reply by Scott F

If the Imodium multi-symptom works better for you, you could get the same results by purchasing the loperamide and the simethicone...
Scott F
Copyright © 2015 The J-Pouch Group. All rights reserved.
×
×
×
×