Activity

Reply by Kmiller

Re: Pizza
Yes! I had pizza tonight. I'm 3 months out now, but have had it numerous times with no issues.

Reply by PouchLogic

What do you mean by bloated? I sometimes feel very gassy after eating especially if I eat a lot of something that makes me gassy. I...

Reply by BillL

Glad that you’ve got some good referral’s there, Olina. I have not seen any of the doctors at UNC, but they have a great reputation. My...
BillL

Reply by Olina

Dear Walking....Will you also give me the names of your docs for back up in case my internist has questions? I feel so much better...

Reply by CTG

Hi Spooky, i am only 4 months since Jpouch. And I am doing good. Learning which foods are good and not.I like steel oats and not sure if...

Reply by AWalkingTestimony

Hello Olina, I had both of my surgeries at UNC Hospital. They did a great job with everything as that is a surgery that the specialize...

Reply by Olina

Thanks Bill for responding. I did send you a post but it must have disappeared. I had my colon removed in 2002 and iliostomyremoved In...

Reply by CTB23

Absolutely a bidet! As an example of how I am doing, went on a 20 mile bike ride today. I had a good breakfast, took 2 Lomotil, made...

Reply by Kmiller

Re: Flagyl
The surgeon put me on cipro yesterday and I feel better. Not 100% by any means but better. I stopped the flagyl as I was having straight...

Reply by DJJ2019

Re: Flagyl
Many of us need to take two different types of antibiotics. Flagyl works differently than say Cipro, they attack bacteria differently...

Reply by Jfill21

Hi pzzzzs, I turn 65 this month and had step 1 of 3 on an emergent basis in October 2016. Recovery from step 1 was the most difficult...

Reply by CTB23

Hi, I am 65 and completed my surgeries with the three step process. Recovery between Steps 2 and 3 was much easier than Step 1. The temp...

Reply by BillL

Hi Olina it’s good to hear that you are nearby. I had single stage surgery in 2016, so I am will have had my J- pouch for four years...
BillL

Reply by strange

5 years since my takedown surgery (attachment) and life’s wonderful. No urgency whatsoever, 3 to 4, something 5 bowel movement (BM) per...
strange

Reply by Olina

I’m excited to hear that you two are in NC. I’m in Greensboro and do need an experienced j-pouch Doc. Do you see anyone in Wake Forest...

Reply by Weda

Hi, thanks for responding to my message. I also have a partial prolapse of the pouch. I have been having bleeding periodically.

Reply by Alexamsterdam

Hey Elif, Thanks you for your response. I think everyone is trying to find the right balance in diet and medicine to live a normal life...

Reply by BillV

Thanks for the compliment, Jen. Best of health, safety and happiness to you!
BillV

Reply by JenJen

Just to clarify on some previous comments regarding K-Pouch and/or BCIR surgery: K-pouch surgery does not always require the use of “way...
JenJen

Reply by BillV

With the retirement of Dr. Rehnke, there is currently only one BCIR center that is located in Los Angeles with Dr. Schiller and Dr.
BillV

Reply by Olina

The only thing that has worked for me is daily Cipro 250 mg morning and evening. I became very allergic to all UCdrugs..canasa pentassa...

Reply by Pouchomarx

please explain why you are having this procedure and how will it help exactly? I know someone that was supposed to get this procedure by...
Pouchomarx

Reply by Pouchomarx

Bill, one of the issues with a BCIR is not many doctors do them. Last I heard only 2 docs in US do them, Tampa and LA maybe is the other...
Pouchomarx

Reply by duck11

I just want to let you know I am currently in the exact_same_ boat! I too have this pouch causing mysterious problems after 20 years. It...
duck11

Reply by Elif

Hi Congrats on reaching the 1 year milestone! I had my takedown on March 4th, so it has been almost three months now. I never took...
Elif

Reply by Kmiller

Re: Flagyl
Thanks Scott. Its frustrating because it almost seems worse but thought maybe thats part of the process.

Reply by Scott F

Re: Flagyl
Flagyl alone never did the job for me, but I gave it at least a week before giving up on it.
Scott F

Reply by JenJen

Short Version: Dr. Shen = amazing man and a gift to his GI patients; Cleveland Clinic = uncaring, awful place for GI patients. Don’t go...
JenJen

Reply by ljk

I also saw Dr. Dietz and really liked him, just not the idea of having K-pouch. From my understanding you use way more bowel this way...

Reply by CTBarrister

Did the doctors give you any feedback on what is causing the dyssynergy? As I understand it, this term generically refers to any...
CTBarrister

Reply by JenJen

I understand your pain and am sorry for your lost pouch. I also understand the emotional results of the long term poor diet and limited...
JenJen

Reply by David W

My recovery wasn’t horrible. I also had an open surgery. I was in the hospital for six days with no complications. My hospitalization...
David W

Reply by AWalkingTestimony

Yes it kinda sucks after you have your surgery.. its a few appointments then your on your own with no guidance. Just have to figure out...

Reply by Alexamsterdam

Thx for your reply AWT, this site has given me much information and helped me a lot during my recovery. The doctors are not able to give...

Reply by ytcrockpot

You could be having a cipro side effect. if your pain is that bad you should call the doc. hopefully you feel better soon

Reply by Kmiller

Happy pouchiversary! I'm at 3 months, can't wait til I'm further down the road.

Reply by Andrina

Yesterday was my first pouchiversary and I had no bowel movements and I was also not in pain. I think I'm finally getting a little bit ...

Reply by BillV

Your journey with a J pouch is very similar to mine. After 30 years, my J pouch had to be removed due to recurrent high grade dysplasia...
BillV

Reply by phdwithpouch

Great! Keep it up! Yes it's surprising what just a small change can make, earlier this year I randomly decided to remeasure my inseam...

Reply by jpoucher21

It’s going well, I am starting to work up to longer rides and really enjoying it. I haven’t completely resolved the sore on my butt but...

Reply by Mysticobra

Your last paragraph says it all. But what you mentioned above it says alot too. Only you can make the decision for removal. I had to do...
Mysticobra

Reply by AWalkingTestimony

Don't feel sorry about the rant at all..i just vented a few days ago on here also..i am 7 months in from my take down date. I am a...

Reply by BillL

You are very welcome. Please feel free to contact me anytime. In fact, if you send me a private message, I can give you my phone number...
BillL

Reply by AWalkingTestimony

Yes you are right up the road..I do want to say thanks BillL..I am going to try some of these things and see how it goes..This is why I...

Reply by PouchLogic

Good luck! It sucks to be there, I worry about getting to the same point. An ostomy bag was better than the UC condition I was in but I...

Reply by Caty

Hello Almac, Most people deal with medical issues on their own terms. I've been in your shoes; it's a difficult decision to give up a...
Caty

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