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Reply by HeatherF21

I do not believe UC or Pouchitis are related to diet. I was diagnosed with Colitis in my teens at a time when I was not a big eater at...

Reply by Still Standing

Andrina, you're going to just fine with this third surgery. Yes, it will take a while for your pouch to feel like normal. You will go...

Reply by Scott F

I have no idea what causes chronic pouchitis, other than bad luck. I think that making up stories about it is likely to do more harm...
Scott F

Reply by PouchLogic

Just one packet a day, some days I'll take a second one in the afternoon if I'm feeling off. My brother also has UC, he's managing on...

Reply by maddie18

Hi All, What are your thoughts on how we got into this situation to begin with? Do you think it's genetic or stress .... Also wondering...

Reply by maddie18

Thanks Scott and Pouchlogic! 'I have managed to stop taking antibiotics, provided I take at least one packet of probiotics of either...

Reply by CTB23

Yes, you will do fine. To be honest, at the time I was getting ready for my final surgery, I was more concerned then with my previous...

Reply by Andrina

Thank you. I think this surgery is the most emotional for me. Taking out my colon was nothing. It was a relief in fact. This time my...

Reply by Aimc

Andrina, remember when you first got your stoma? I remember I didn't think I'd ever be able to take care of it properly. In about a...
Aimc

Reply by Andrina

If I don't have to pack it but just cover it up that would be nice but I know this surgeon will want me to pack it

Reply by Aimc

Andrina, you will do fine. I did not have home health care after my last surgery either. I took care of it on my own. It heeled nicely.
Aimc

Reply by Andrina

I already asked about a home nurse they said no. Even the ostomy and wound care is not a wound care for previous stoma sites I asked...

Reply by Scott F

There are lots of perfectly reasonable ways to manage wound care, grounded in medicine, culture, and individual patient circumstances.
Scott F

Reply by strange

My J Pouch and takedown surgery was performed by an eminent Surgeon and his Team at St Marks Hospital, Harrow, London, where J pouch...
strange

Reply by girlunky

I did not have a wound care nurse after takedown. My surgeon instructed me to remove the dressing and shower 2x a day , not touching the...

Reply by CTB23

I did not have a home nurse for my last surgery. My surgeon used steri strips to close the site and pads to cover it. I replaced the...

Reply by Cath75

Hi! I had to stop humira after just 4 months. Not due to side effects (I didn’t notice any) but because I immediately started to produce...

Reply by strange

After my takedown, my Surgeon said the wound (old stoma site) mustn't be packed (he was insistent on this) but cleansed daily and...
strange

Reply by Sunflower70

Hi. Sorry to hear of your troubles. Here are a few ideas: - If it's pouchitis that didn't resolve with Cipro, you could try the VSL3...

Reply by n/a

Re: heat
Heat hasn't upset my barrier too much, but when I get itchy under the tape part of it, I squirt a tiny bit of nasacort on my fingers,...
n/a

Reply by PouchLogic

If you haven't tried vsl3 or Visbiome yet you may find relief and not need to be on antibiotics long term. I have managed to stop taking...

Reply by PouchLogic

Re: heat
I found after having a jpouch I don't tolerate the heat as well as I used to in general.

Reply by Scott F

VSL isn’t discontinued, but it’s very hard to find now. Sam’s Club still can get it for me, but that was the eighth pharmacy I called.
Scott F

Reply by maddie18

VSL#3 I was prescribed to me along with the Cipro and the Flagyl but I've heard it is discontinued. Where do you get it from Scott? I...

Reply by Scott F

I’ve been on Cipro almost continuously since 2009. I carefully experimented to find the lowest effective dose, and discovered that...
Scott F
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