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Reply by dpol

So sorry for your troubles! The last time I had trouble intubating, I just left the catheter in for a few days and it helped. If you...

Reply by JordySimo

@Winterberry , I’ll openly admit I’m guilty for not drinking anywhere near enough water, I tell myself every day to drink loads but I...
JordySimo

New Member

Reply by iHateColitis

I was discussing this with my wife a week or so ago. in like 3 years, I didn't even get a cold once. i've had my pouch now for 15 years.

Reply by CTB23

Asa, Hope you feel better soon. Take care of yourself! We’ll be rooting for you.

Reply by girlunky

Hang in there Asa, I know that can be a side effect from the anesthesia. Hopefully it won't last much longer.

Reply by Asa Lay

Developed a problem with chronic dry mouth from surgery onward. The last 3 days have been hell. Tonight will be the worst. Their...
Asa Lay

Reply by kta

They had never mentioned any discomfort with the med. I did once ask her if the whole opioid crisis and the new ruleswould interfere...

Reply by Scott F

I’ve always gotten better results from Lomotil than Imodium - perhaps it would be adequate for you, if you can find the right dose.
Scott F

Reply by LIGuy11

I was just thinking about this too. I'm 29 and have had my j-pouch since age 16. I do tend to get sick easily. I work at a cancer...

Reply by Winterberry

Since 2016 takedown, I've only had two mild colds. I used to get colds twice a year! I always get an annual flu shot and I haven't had...
Winterberry

Reply by JordySimo

I am very rarely ill also. Only ever had the odd common cold here and there but nothing else. Before my surgeries I was picking up...
JordySimo

Reply by CTB23

Yes, haven’t had flu at all in the last 5 years and one mild cold and I work with kids and their families,

Reply by Twanggg

Hello all. has anyone noticed since Colectomy that they don’t get colds and flu as much or very mild cases. In 12 years I think I got it...

Reply by Andrina

Since I wrote this, I've been able to pass gas three times. I'm afraid to soil myself so last night I put on a diaper. This morning I...

Reply by Scott F

Yes, you are overthinking this, IMO. A person with a J-pouch will never have anything close to what is generally meant by a “healthy...
Scott F

Reply by PouchLogic

It can be hard to get rid of pouchitis so I wouldn't suggest any shorter than two weeks for antibiotics either. I take probiotics to...

Reply by Bubba1028

I’m 2.5 years post takedown and I guess my numbers are higher. I go about 10 -12 times during the day and on a good night I only get up...

Reply by kta

Yes, Scott. That is correct. I guess I just don’t know if it is normal for j- pouchers to have explosive gas and crazy frequency. I have...

Reply by kk

I went for a long time getting really sick at my stomach and at times throwing up. Then I got really sick, hospitalized then had...

Reply by Scott F

Yes, take the full two-week course, to maximize the chances that you’ll be done with this for a good long while. No one in their right...
Scott F

Reply by Scott F

Self-dilation is safest when it’s used to maintain an opening created “professionally.” Some folks here do it all the time, and can give...
Scott F

Reply by JHendrix

Cipro was the only one that I took and it cleared it on its own. But I don't have alot of experience with pouchitis.

Reply by Charlie1026

Thank you both for your input. Do you recommend taking the antibiotics for the full two week course? I’ve never followed that rule only...

Reply by Aimc

To be safe. Call your GIoe surgeon and ask what advice they would give you. Aimee
Aimc

Reply by PARRR

Thanks Scott. After I posted, I thought back and remembered that I was having very similar issues back in January of this year. I made...

Reply by Scott F

It sounds like pouchitis to me. I’d normally suggest taking one antibiotic rather than two, unless your doctor felt strongly about your...
Scott F

Reply by Scott F

I’d guess you might have a stricture rather than constipation. Is there a particular reason you think it’s constipation? Go easy on...
Scott F

Reply by Scott F

The advice about sleeping through the night has been written here a bunch of times. Find the search function (on my browser it looks...
Scott F

Reply by JHendrix

I go much more frequently than the 4-6 and it isn't an issue for me. Everytime I sit down to pee (woman), I usually empty the pouch too.

Reply by JHendrix

I developed my only case of pouchitis right after surgery. I may be way off base with this but I attribute it to the liquid diet which...

Reply by Charlie1026

That’s what I have for antibiotics too. I’m worried at how quickly this happened after surgery! Do you get pouchitis often?

Reply by Winterberry

I used to stop eating hours before bed, but would wake up hungry and still need to use the bathroom. So I tried to eat a small piece of...
Winterberry

Reply by girlunky

You're going to feel much better once you get rid of the inflamed colon! Try and walk asap after surgery (even the same day if you can).

Reply by oml703

Asa Lay, Thinking of you and sending healing vibes . Hope you are doing well.The first couple of weeks are difficult, strange and at...

Reply by PouchLogic

I agree with Scott, I usually make it through the night but not always. My best suggestion is don't eat or drink later than a good...

Reply by PouchLogic

It's possible you have pouchitis. Very similar to my symptoms. What antibiotics do you have? I usually take Cipro and flygal. You can...

Reply by SJAN810

TE Marie, Thanks for responding! Sorry to hear you have dealt with similar issues. I'm wondering what you mean by a permanent ileostomy?

Reply by TE Marie

Did you discuss getting a perm ileo instead of a temp one? I had a permanent ileostomy while being diverted from my j-pouch. My surgeon...
TE Marie
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