Activity

Reply by Pouchomarx

They were both my doctors, I still talk to Remzi all the time. They are friendly but will probably be the same relationship as its been...
Pouchomarx

Reply by girlunky

Hi Charlotte, your increased pain could be unrelated to your jpouch surgery. When I was in peri-menopause (around 40+) I had unbearable...

Reply by Pouchomarx

I am in a huge Jpouch Facebook group and they have all said that's BS, he just cant recruit you to come see him there if you are a CCF...
Pouchomarx

Reply by Sos

Also chia seeds and tahini (made from ground sesame seeds) have lots of calcium so I have that every day . I avoid calcium tablets.
Sos

Reply by Spooked

Thanks! I've got a liquid D & K going, but I'll check out the video.

Reply by Sos

You need to take Vitamin D3 and Vitamin K2, I also take co-enzyme q10 and also I use a good sea salt (Celtic or Himalayan pink salt are...
Sos

Reply by Winterberry

Lizadair, ask your doctor if Florastor can help you with c-diff. Google c-diff and Florastor so you'll know what to ask your doctor.
Winterberry

Reply by Spooked

Re: SIBO
Thank you. I really appreciate your advice on these forums!

Reply by CTBarrister

Re: SIBO
I normally use the liquid Pepto Bismol, which has to be shaken very vigorously before each use. I use the chewable tablets when I travel...
CTBarrister

Reply by Spooked

Re: SIBO
Out of curiosity, CTBARRISTER - do you take the liquid Pepto Bismol, or the pills?

Reply by Spooked

Sorry to bump this thread, but I just got my DEXA scan results and they're worse. I've moved into full-blown Osteoporosis and I'm kind...

Reply by girlunky

Hi Bradd, sorry to hear you are struggling. I'm a bit further on with my pouch, almost 10 months. At two months I was definitely having...

Reply by TAJ

I gave them three of the Dr names, tho I have appointment in March it’s just when you need a Dr you are unable to see one... its always...

Reply by Pouchomarx

I am still not buying this... I believe if once hes established in NYC that we couldn't get an appointment with him there.. I think he...
Pouchomarx

Reply by JHendrix

I'm really sorry to hear you are still suffering. I was hoping the silence was a sign that things had resolved. Scott is likely correct...

Reply by Scott F

There are two pieces of good news here. The first is that you now seem to have a diagnosis, so treatment choices can be directed...
Scott F

Reply by LizAdair

Well, it is complicated. And I am back to being fairly irritated about it. I finally got back in with my GI because (although I felt...

Reply by Scott F

Jock itch is a fungal skin infection in the crotch, usually in males due to the skin folding that can trap moisture. It’s essentially...
Scott F

Reply by ElmerFudd

So... eye doc did a thorough exam of front and back of my eyes. Noted some inflammation in the front of the eyes, and talked a lot about...
ElmerFudd

Reply by tf

It is good hear success stories. That is awesome to hear. I would b grateful and only look for good days to come.
tf

Reply by tf

It is good hear success stories. That is awesome to hear. I would b grateful and only look for good days to come.
tf

Reply by TAJ

I’ve been having lower back pain, cramping, nausea, tummy feels like a balloon at times, tight, very uncomfortable. It’s been almost 4...

Reply by Cocomama

low dose prednisone by mouth. My doc says ok. 5 mg works pretty well. I do this occasionally. Dermatologist was no help for me.

Reply by CTBarrister

Re: SIBO
You might have a pouchitis issue as well. When were you last scoped? My personal opinion is that these issues will not be helped that...
CTBarrister

Reply by herb ear

Re: SIBO
Do either of you have any idea how after finishing taking cipro within days I could become really bloated and gassy which lasted weeks...

Reply by Ellie85

Thank you for the reply. My ileostomy was much finickier and more difficult than my j-pouch has been. I had trouble with blockages and I...

Reply by RinaJP

Hi Ellie. I know I’m probably going to scare you with my story, but if the pouch has to come out, the pouch has to come out. I, like...
RinaJP

Reply by Bobbi Li

Thank you! I did check the web site and it is still pretty expensive. I will have to weigh my options.
Bobbi Li

Reply by Scott F

Itchiness is sometimes a sign of a fungal infection, which (if you have it) can drive you crazy. Sometimes, though, itchiness is just a...
Scott F

Reply by herb ear

Re: SIBO
Thanks for your input

Reply by Matchaqueen

Hey Scott! Thanks for your reply. I only took the ursodiol for one week at the end of June. I asked my doc if I could go off of it...

Reply by Scott F

Re: SIBO
I wouldn’t expect Florastor to help, unless you have C. diff. Bacterial probiotics don’t promote SIBO, as far as I know.
Scott F

Reply by Scott F

Have you stopped the ursodiol? Tried a bidet? In any case, I’d expect the proctodan HC to help a lot, hopefully permanently.
Scott F

Reply by herb ear

Re: SIBO
Interesting... yes I do take immodium....i guess I should continue with the rifimaxim until I am finished and by then I will be off...

Reply by Scott F

You should expect to keep doing just fine, as most J-pouchers do. You won’t find many of them on this site, though, since people tend to...
Scott F

Reply by Scott F

Re: SIBO
My SIBO was well managed with a couple of months of doxycycline. Rifaximin has a better side effect profile, so it’s a good choice (and...
Scott F

Reply by Scott F

Bo Shen isn’t technically a surgeon, he’s a gastroenterologist. That being said, he does use some small tools at the end of a scope...
Scott F

Reply by CTBarrister

Re: SIBO
You are attributing a cause-effect relationship between Cipro and SIBO, based on what exactly? Cipro is an antibiotic which kills...
CTBarrister

Reply by maddie18

I take Webber Naturals. Acidophilus. It's really affordable and it works.

Reply by PouchLogic

Have you checked visbiomes website? I order directly from them, I am in Canada and I don't have a script for the double strength so I...

Reply by Scott F

VSL #3 DS is available again at some pharmacies. I’ve been getting it at Sam’s Club without any trouble, though last I checked my CVS...
Scott F

Reply by kta

I rotate Cipro, Amoxicillin Clauvinate and Xifaxin, using each for two weeks. Before this, I was on Cipro only for 14 years. The...

Reply by CTBarrister

See the below threads: https://www.j-pouch.org/topic/bo-shen-leaving-ccf https://www.j-pouch.org/topic/...the-cleveland-clinic
CTBarrister
Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×