VSL 3 and Pouchitis

Dave1970Member

Hi, new member here. I have suffered occaional bouts of pouchitis since my surgery in 1996. Unfortunately i feel that the re-occurances are more frequent.

Spoke to my doctor on the phone and have appointment next month.

He mentioned VSL 3 during the phone call so i made an online purchase of capsules and received the package and the paperwork, in the doasage section for capsules said "pouchitis-N/A"

Should i have purchased the packets instead?

I plan to take what i paid for but any advice would be helpful.

Thanks

1/20/182:13 PM

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Scott FMember

It’s the same stuff in the capsules as the packets, but the recommended dose (measured in CFUs) for pouchitis is a truly crazy number of capsules. Almost any available size bottle of capsules will be gone in a few days, if you’re taking enough. Did your doctor suggest a dose?

1/20/183:44 PM

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Dave1970Member

Hi Scott, thanks for the response...i will be talking to my doctor soon in person. He didn't suggest a dosage over the phone. I should have asked before i ordered it.

Is this VSL3 a medicince to treat pouchitit and IBD or is it taken to prevent the pouchitis from happening?I assume its to prevent ot when you dont have it.

I'm learning about VSL 3 on the fly so i appreciate your help.

1/20/184:37 PM

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Scott FMember

The data is best for VSL preventing or delaying pouchitis. Some people (including me) have also found benefit in managing chronic pouchitis, but there isn’t great research data to support that. Some people are able to get insurance coverage for the prescription-only DS (double-strength) form. I suggest you do a search on this site for VSL and read the dozens of discussions we’ve had about it.

1/20/184:50 PM

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Dave1970Member

Ok thanks Scott. I will look in to the DS.

Thanks

1/20/185:23 PM

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