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Hello, I am new to the site. I am advocating and researching on behalf of my adult son with unresponsive to meds UC. Been ina "flare': since 2010. Looking for recommendations or the "stay away from" Docs in the Denver area that are highly skilled at J pouch surgery. Also wondering if those of you recommend going to Mayo or Cleveland Clinic for not just a second opinion, but possibly the procedures?  With the distance, does that effect outcomes? Is it worth it. THANK YOU!!

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What were Jeff's primary PSC symtoms? My son has had increasing high LFT"S with his Entyvio doses ( which hasn't made a huge diff in his UC.) Praying it's not another complication. My concern about C-Clinic  is that how do you do all your follow ups --not just new surgeries, but any problems/concerns? Seems like your care could be seriously fragmented between CC and local docs. I am so sorry to hear of all your son's issues too. As a newbie I am not understanding that there is a second take down. Im starting to feel uneasy about this J pouch option as a viable solution. :-(

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