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Hi all,

i was connected January 13 and have been on quite the roller coaster since then. 

Initiallly was leaking a lot, thankfully that has subsided. Had butt burn after too much orange juice (what was I thinking?!), and remedied that with sitz baths and ilex. Overall feeling incrementally better. 

 

But lately, my stool is absolutely watery (it had been thickening earlier on) and my frequency is still @ 15/day. I try not to strain, and I use a bidet. Yet, just inside my anus (and sometimes the pain seems to also be in my vagina) it is SO sore now. please forgive thus crassness, but it feels like a baseball bat has been inserted. 

 

I have seen some blood, so it may be a fissure?  Does cuffit is feel like this?    And why the watery stool... C-diff?  I have stopped eating Metamucil cookies cause while they did thicken, they also seemed to later cause gas which meant more urgency. 

 

I dont know know where to begin to address this. Especially the pain. My surgeon is closed today, but I will call tomorrow. He is really good at listening to me, so if anyone can give me guidance in what to ask/say, I sure would appreciate it. Ouch. 

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For me, oatmeal is the ultimate comfort food.  I use the regular Quaker's oatmeal....not the minute variety.  It seems to regulate the consistency of my B.M.s and make them easy to pass.  Also soothes the anal area.  I do add salt and bananas and/or blueberries without a problem.  I don't add sugar because I prefer it salty to sweet.  Keep applying a barrier cream.  Sometimes it is a trial and error process for all of us.  Best wishes in finding a quick solution!

It sounds like it could be cuffitis or c.diff or both of them.  That is what it felt like when I was first diagnosed with cuffitis and and c.diff at the same time.  I no longer get c.diff but have pouchitis that appears to be chronic now.  You did the right thing in calling your surgeon.  I had success with Lopermide (prescription Imodium).  You might want to try "Super Digestive Enzimes" by SolRay or LifeExtension brands for gas. It is better than beano and I think cheaper.  I use to take it anytime I ate anything that was spicy.  I used metamucil in gel caps to avoid mixing it with anything.  It is available in store brands too.  Some also use Benefiber instead or metamucil.

 

It's a good thing to have a bidet. Take care

Last edited by TE Marie

Thank you for replying. my surgeon is double booked, but I will be on Stand-by tomorrow. I will ask at least if the labs can test for c-diff. 

i did try a big bowl of oatmeal this morning, and I don't think it is going well. Constant desire to poop all afternoon. :-/

so now I am doing a search on this site regarding fiber. It seems most people have good results from soluble fiber, but others (based on Dr. Shen's advice) are avoiding that too.  Metamucil wafers did help bulk things up and slow things down... Until a few hours later when it seemed to act as a laxative and cause gas. 

So tricky!  I am keeping a thorough log, so hopefully I'll figure something out. 

Yes, as, thank heavens for my bidet. I've had my trusty throne since UC days. 

heres some tips for butt burn....

avoid like the plague:

greasy fried food - had a pouch for 7 yrs and greasy fried food still gives me a day and a half of trouble...Sugar of any kinds tend to make the acid much worse....anything of bulky size will cause cramps/urge to go - eat smaller portions and space them out....dont skip on eating cause it just makes for liquid butt burn...chew well too

use A n D ointment before and after pooping - I have tried everything and this works the best and its so cheap for the generic at stuffmart..

lastly stay dry by changing underwear alot so it helps with the burn/rash....

hope this helps

 

Besides metamucil have you tried Imodium?  It slows down the gut.  I have a better time using the prescription Loperamide over the OTC Imodium. It was difficult for me to tell how the Imodium was affecting my BM's.  It doesn't kick in as soon as the Loperamide capsules.  When I take metamucil it's in 3 capsules 2-3 times a day, which equals less than 2 tbls.

 

Indy_Dave brought out a good point. eating smaller amounts and more often. When everytime you eat it causes pain then you don't feel like eating. Members here told us several times to do as Dave says.  I lost 65 pounds in a year, most of it was during the first 6 months.  I had it to lose from prednisone.  

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