Originally diagnosed with crohns 2009. In 2012, had 3 step J-pouch surgery. Was told pathology showed UC not crohns. No major problems until now five years later. I have pouchitis and inflammation in my esophagus, stomach, and small intestine as well. So now they tell me it’s looking like crohns. No response to Pentasa, antibiotics, or entocort. My doc is now recommending Entyvio. I am concerned about the side effects and risk of future problems. Also because I am working as a nurse and exposed to illness. Anyone have a similar situation having to go on biologics after j-pouch? Crohns diagnosis after UC and pouch? And has anyone had positive results with Entyvio? Thanks
I’ve been on a variety of biologics for about 12 years now, mostly for IBD related arthritis. It is sort of a hassle, but I have been fine. I have not tried Entyvio yet. I am currently on Inflectra (biosimilar to Remicade). My chronic pouchitis has been in remission with Remicade/Inflectra for the past two years.
Yes me I’ve been in Entyvio for over 2 1/2 years I had some side effects and I pre med so that takes away most and as time has gone on it gets better The first year I was not sick at all this was a bad winter and I caught two sinus infections and the flu so I’m not sure I can blame it on the drug I went into remission immediately good luck you should be fine