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The best of luck. I'm hope this works for you.  Jeffrey has a similar issue and we were supposed to see Dr. dietz, but now with the PSC diagnosis, the transplant doctors want everything done at Weill Cornell.  My understanding there is a doctor at Cornell that trained under Dietz, so I'm hoping he is as good, but I'm still keeping Cleveland as an option.

 

i so hope this works for you!  It would be nice to hear some good news for a change!  Praying for you!!!

dianne

Well, the procedure went well, but the question is if Shen was able to get enough Fibrin glue to the leak. Because it had to travel a far distance through the catheter is began to freeze up. He said he was able to get some in there but not as much as he would have liked. I have to go get one of the dye/enemas in 2-3 weeks to check if leak is still there. I honestly dont feel good about it. He said he has one more trick up his sleeve we could try if this didnt work but he needs to look into it a little more. There is another type of glue that they use for varices(bleeding veins).. I  told him I was his guinea pig so....

I just emailed my surgeon to get his thoughts on this other type of glue, I'm just curious on what he thinks. Shen has tried everything. He has told me I am his most difficult case ever. But I agreed to be his guinea pig. Not only am i trying to fix myself but others who may have the same or similar issues like mine. I will not have a redo, too much hell my body,mind, and finances went through. I am hoping if the fixes dont work I can just stay as is with my loop ileo and disconnected jpouch.

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