Is there anyone who redid the pouch, i.e. remove the old one and construct a new one? What is your experience?
Had my original pouch in 2011 dealt with pouchitis or what seemed to be for 3 years tryed all the stuff vsl3 antibiotics diets no help went to nyu as a last resort was going to consider a permanent bag going 15 -20 times a day. Dr David Hudesman saw me reviewed my case everything he was seeing pointed to pouch failure more than pouchitis .At that time just about a year ago Dr Feza Remzi was coming to nyu from the Cleveland clinic Dr Hudesman suggested I get a appointment with him which i did In sept 2016 . He ran a bunch of test ct scan mri scope xrays and concluded that the pouch was not functioning properly also bad tissue in pouch causing inflammation so we decided to redo the pouch. Had the bag back in october 20th waited untile april 18th to replace rebuild the pouch so as to let everything calm down and heal and so I could get some sleep and get myself healthy again .Had new pouch connected July 25th 7 weeks ago had my post op visit yesterday and everything is going well I now go 5 to 6 times a day with no discomfort .I know its only been 7 weeks but I am very happy with the outcome I was never happy with the bag. I wanted to exhaust every option before I gave in to a permanent bag . I am glad I did so thankful to have found Dr Remzi thankful for the second chance for a good quality of life no matter what the future brings.The doctors and staff were great. I hope this helps you.
this is very useful. Exactly what i was looking for. I am also in NY and I was already pointed to Remzi.
Like I said he and his staff along with Dr Hudesman who is a professor of med in the Gastroenterology department were great to deal with. I live in NJ and will continue to follow up with Dr Hudesman .
Thanks. I would be interested to know how you feel in a year or so....