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I have been suffering from this ever since my J-Pouch "take down" 4 years ago. It has gotten progressively worse. It occurs whenever a.) I eat certain foods,i.e. tomato sauce, b.) exert myself physically (The level of physical activity that can be tolerated before the onset of burning has diminished with time) or c.) for no apparent reason. 

My muscles have almost completely atrophied resulting in a very significant change in lifestyle because the only relief is to sit down and do nothing until the burning eases.

Several gastroenterologist have told me they can think of nothing else to do to alleviate the burning. My pelvic floor therapist believes the anal sphincter and puborectalis muscles go into spasm and irritate the pudendal nerve, which nourishes those muscles, and this is what causes the pain. Pudendal nerve block injections have not been beneficial.

Does anyone know of someone with a similar problem who has found a treatment that provided some relief?

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Hi Fred  I have had my surgery 8 years ago.  I still have burning when I eat certain food.  tomato sauce, hot and spicy. eating certain veggies and many other things.  I deal with the same problem.  Certain food do not agree with me and the burning is excruciating.  Try to stay away from the foods that are aerating  your system.  I still can't figure it out.  I try to gain weight and I can't because there are so many things that just do not agree with me.    I would love to get an answer also.   Grace

 

 

 

Hi, I struggled with the same for the first year until I started taking Metamucil 2x a day.  I take it before breakfast and dinner.  One tablespoon in as little water as possible to get it down.  Now I very rarely experience burning unless I go crazy with spice or eat a lot of sugar (both of which I avoid).  

It's been a lifesaver!

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