Hi everyone I haven't posted in a while because I after loads of trying I finally got pregnant and well I've just been enjoying it
I've had an ileostomy for about 2 years now due to ulcerative colitis and I've always had some rectal bleeding and never really taken anything for it. I've developed quite a few hernias on the incision line also and scare tissue around the stoma which hurts a lot! Because of all of this I ended up in hospital last night and when the consultant came to see me about everything she said how's the rectal stump I said ok but I get bleeding she immediately said that needs to be treated with steroids or azathioprine! I really really don't want to take either because I had such a bad reaction to steroids and immunosuppressants scare the hell out of me :| Im really lost and scared as to what to do because I really want to have the reversal at some pint but probably not for about 2 or 3 years as I want another baby hopefully before I get re connected! I'm just concerned and don't want to do anything wrong and jeopardise being able to have the j pouch surgery
So basically I wanted to know if this bleeding is normal, how has anyone treated it, and can you still have the reversal done (even 2 or 3 years down the line) or does the bleeding mean I'll have to stick with the ileostomy? Also if you have the ileostomy for years before getting the j pouch done can you still have the j pouch or does anything go wrong in the mean time because I will have had the ileostomy for ummm for about 4 and a half years before having the n pouch done
Sorry for such a long message I'm just so worried and don't want to jeopardise having the j pouch surgery in the future, any advice would be great, thanks
Original Post