Good news first...my sister-in-law is out of O.R. and does not have an ileo. They did a massive resection but kept the rest of the colon so no bag, j pouch or any other type of bag. She is still groggy and won't be 'seeing' anyone for a few days but we got the best case senario. Now we wait for the Pathology reports! Crossing fingers.
Now the Rant!
Grrrrr!
I was at school (think community college level) and one of my students came to excuse herself from my afternoon class. Said that she wasn't feel very well. She was doubled over and holding her gut.
The flu is going around. She floored me when she admitted that she had Crohns.
She has been suffering for 3 yrs and taking the usual meds but is flaring badly. Has been for months and no one is helping her.
Grrrr.
No one spoke to her about surgery, resections, pain management, bags, pouches etc.
Hers is very high up in the upper G.I. track so a J pouch is out of the question. She has one very effected loop that is severely ulcered and killing her.
I am just so angry that there is so little infor out there about this and NO ONE is talking about it in this country!
When I told her that she was not alone, that there were others out there and then gave her my surgeon's number she nearly cried.
She is desperate for surgery, wants her life back and was hung out on a limb. Darn. It is 2014 and we are still living in the dark ages here.
I promised to help her through this if I can and walk her through diet, drugs and doctors...Any advice would be helpful.
Sharon
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